Week 28 – Day 1

What a busy day! Bill was in the office today. I went through Trevor’s morning routine and then packed him to go with me to the hospital today.
He was entertained by Brendan’s little swing while I took a shower.

We had to take the whale stroller to be able to carry Trevor and all of the stuff that I was taking in for him and Brendan today.
Trevor was so charming, flirting and smiling at all the nurses. He was eating up the attention. They all were impressed with how big and strong he was and his gorgeous blue eyes and big smile.

We need to teach Trevor that it isn’t polite to blatantly stare at a lady’s chest! He did that a lot today!

I had a family meeting at 11:00am and Trevor came with me. I was sitting at a table with the doctors, nurses and social worker and Trevor was kind of sitting on the table in front of me listening very intently to each person that was talking.
Then suddenly, an eruption shook the table. A fart so loud and boisterous and juicy that everyone was left speechless for several seconds until they all burst out laughing. Trevor’s pear juice obviously kicked in, he just needed an audience.
We finished up the meeting and went back to the room. I plopped Trevor in to the pack and play to change him, without realizing that he had pooped all the way up to his neck. His outfit was soaked, my shirt was soaked, now the pack and play sheet was covered.

Trouble Trevor finally clean! Fortunately I had just brought clean blankets for Brendan and I had some clean jammies that fit in the diaper bag.

Brendan did another six hour sprint today. Tonight he is going to have another go at it, they are going to do a six on – six off cycle with the NAVA and automode to see how he handles it. Just one step closer!
He was a good boy today.

Somebody found their thumb! I was watching close to make sure it wasn’t a tube pulling diversion tactic.

He was feeling silly

He saved his biggest smiles for when Daddy showed up. He hadn’t been able to see him in a few days and Brendan lit up when Bill talked to him.

The boys were never awake at the same time. Trevor took a nice long nap which allowed me to give Brendan a good thorough sponge bath and change his ostomy base. The therapist came and sat him up for play time too, it would have been good Trevor visiting time if he hadn’t been so deeply snoozing.

The boys are looking forward to seeing their Aunt Shannon tomorrow. She is coming from Pittsburgh to visit! Then Friday they get to meet DrUncle Jon too!

Week 27 – Day 7

Brendan looked like he was feeling even better today. He only needed additional medication overnight when they gave him his “bath” and tried to move him to the scale for a weight. (His weight was up to 14lbs 10oz!) The doctors have changed the orders so that the day shift crew can do the bath and weight so they don’t have to disturb him in the night time when he really prefers to sleep.
I went early this morning to see him, and then late in the afternoon I took Aunt Beth for a quick visit.

He gave Beth lots of smiles, and would have been talking up a storm if he could make noise.

Brendan did a 6hr sprint on the vent today and did a great job. He was pretty tired when they put him back on NAVA and they had to turn up his oxygen a bit to help him rest. They also upped his food from 33ml/hr to 35ml/hr (that’s just under 2oz more formula per day more). The more he can grow, the better and stronger he will get with his independent breathing. It is amazing that he is 3lbs behind Trevor. He has kept up well all things considered!

Trevor had a fun time helping Daddy work this morning while I was with Brendan. When I got home, he had a big bowl of oatmeal and his pear juice. He loved the oatmeal, sitting in his big boy high chair. Then he didn’t want his next milk bottle, I think he was telling us he would rather have the sweet pear! He did finally eat, we will just have to get it in to a routine.

This is after his last bottle in the evening, a bit of a food coma going on!

These pajamas from Gramma are not as big on him as I expected! They definitely have LOTS of room to grow.

He likes the loose stretchy pajama pants so much, he was trying to stretch them up to his mouth to chew on them!

Week 27 – Day 6

Sure enough, no antibiotics and no morning challenges for Brendan. He was pretty comfortable. I got there around 6:30a and held him until almost 11:00a. He wasn’t smiley, but he seemed relaxed.

Brendan seems to have discovered his fingers, not that they haven’t been working for him all this time for tube pulling. They must just have a mind of their own!

No PRNs today, just a little tylenol in the afternoon so they could change the dressing on his PICC line. He was deeply asleep when I put him back in to bed. He did a five hour sprint on the vent today! At the end, he was showing signs of being tired and working a little harder to breathe but it is still progress. It is a slow training getting his muscles conditioned to breathe on his own again.

Trevor gets more and more active every day. He is seriously teething now, I just expect little teeth to pop through any time. He has on his nice summery shorts that Gramma bought him, I love the plaid cement truck.