Another difficult day is behind us. I miss Brendan, and I wish that I was well enough to enjoy the time with Trevor more. He was kind enough to take a 3hr nap midday so I was able to nap too. Bill had a lot to do today with his dad (Granda Jack might be going tomorrow to a hospice facility, as soon as they have a bed there for him) and then he went to visit Brendan. He also stopped at Sears and ordered Brendan a super spiffy high end tool box to store all of his medical supplies when he is home. I like to imagine that when he is a man, he will have it in his garage, full of tools (no more medical supplies!)

I had a high fever overnight, I have been taking ibuprofin and mucinex to manage through the day. I will be visiting my regular doctor’s office tomorrow. Trevor so far has been a little more tired and cranky, but no fever, no congestion so far.

It is way to soon to be hitting 100 degrees, hopefully we have a cool spell again soon. At 104 outside, even with the misters on we were not able to spend much time with Trevor in the stroller. It is too bad because he really enjoys it. Good thing we built such a long patio.

Trevor likes his evening nude time before getting in his jammies for the night. He enjoys his brother’s rainforest toy and can’t wait to share it.

The nurses tell us that Brendan is doing well. He slept the whole time that Bill was there, even though he hasn’t had any extra drugs. At least he is upright in his bouncy seat a bit, and looked comfortable.

I probably won’t be able to see Brendan until at least Wednesday. I hope he continues to improve.

I did not like today.

I did not sleep a minute last night because of my sore throat and dripping nose. I drove Gramma to the airport at 4:30am (she made it home safely!). I could not go see Brendan and I miss him. It is very unsettling to not visit him every day, and I probably will need several days away.
The nurses have assured us by phone that he is doing well today.

Bill’s family is working on arrangements for Grandpa Jack to go home to his own house with hospice care. Tomorrow there should be more information.

Trevor seems to be feeling OK, not showing symptoms like I have. He was a bit cranky for the last half of the day but took several nice long naps. He hasn’t pooped since Wednesday again and is starting to have trouble taking his bottles. I really hope that he can get his tummy issues straightened out. He will be seeing his pediatrician real soon for his 6 month checkup so we can talk about it again.

He keeps his fingers and hands in his mouth all the time and drools non stop, so he may have some tooth buds forming. No sign of them visibly.
We bought him a wrench to use on his gums, it is nice and gummy and cool from the fridge. He likes it until it gets warm!

It matches his Daddy’s Little Helper shirt!

Thank you very much to Lisa and Leonard (and Lex!) for dinner tonight. It was a bright spot in a gray day. Trevor obviously has a new friend!

Sorry about complaining for the blog today! Hopefully tomorrow I will feel well enough to be productive if I can’t be at the hospital.

The bad news today is that I have a sore throat and a runny nose that started this afternoon. I was at the hospital when I noticed it. Bill started to feel it too. If we are getting sick, we have to stay away from Brendan. Trevor seems extra tired today too, so I am worried that he might be fighting the same thing. It is not what we needed to deal with. Brendan has been on an antibiotic and will continue for a while. So it is possible that we are getting whatever he had, or that he will be protected from what we have as long as it is not viral. I hope that we can fight this off quickly. Nothing is planned for Brendan this weekend, he is coasting until next week when they will make another attempt to switch him to a home vent.

The worst news is that Gramma has to get on a very early plane tomorrow morning and go home! Today’s post is just a bunch of pictures of her last day with the boys (until she gets another plane ticket to come back!)

There will be no Brendan pictures tomorrow so I am posting extras today.

Lounging!

He seemed comfortable when we got there

He peeked his eyes open enough to see us and gave us a little sleepy smile

Gramma’s smothering!

Oh silly Gramma

Gramma got to hold Brendan for a while

He had a comfy little nap

Trevor is only crabby when he wears his crabby clothes

Trevor got a lot of cuddle time in too

Gramma had to tell him she was going home tomorrow

Tummy Time Trevor video!