With Bill back in the office and Gramma with Trevor, I spent the morning with Brendan. Bill went to visit him after work. Brendan was a serious crankasaurus today. He was awake for hours and hours and just couldn’t seem to get very comfortable. He pulled the new IV line that they had put in to his foot yesterday so there is one back in his head again.
They have decided against doing a bronchoscopy. The pulmonologist came to see me and said that the risks and stress of doing it outweighs the benefit of having the information at this point. They will give the other treatments time to work first.
She said they are going to add an inhaled steroid to help reduce the inflammation and they are going to continue the percussive therapy (which of course Brendan LOVES).
So far, they are going to stay on track for his other procedure, we will see how it goes all this week. The general feeling is that he will not come home again until after his major repair.

Trevor got spoiled. Nothing new there!

A little bit of food coma

Trying to burp a limp noodle baby

Brendan’s silly faces he makes when he can be happy are hard to photograph, I didn’t have enough hands and my phone camera wasn’t fast enough!

Gramma accidentally clicked to take video while taking pictures today. This video is ultra short, but I like Trevor’s little grin.

Today started with Brendan’s CT scan. He came through it very well and was still just a little sleepy from the anesthesia when Gramma and I got to the hospital.
The doctor was there to show us the images from the scan and it was pretty startling to see just how much junky build up there was in his lungs. It is the kind of problem that just looks like faint haziness on the xrays, and it isn’t something that you can hear listening to his chest. But it definitely is significant in his breathing.
They are going to continue the antibiotic therapy. Starting tomorrow, he is going to get percussive therapy every four hours to help break it up and try to drain it out. The buildup is all in the back, so he is going to be spending a lot of time on his tummy to help it drain and release. They are planning to do a bronchoscopy tomorrow to try to get even more information.
He was in a good mood today, probably with a little chemical help to keep him comfortable. His crying was definitely muted and far less energetic than usual.

Brendan spending some time on his tummy. They moved his IV from his head to his foot while he was under anesthesia.

“you’re not coming at me with tape, are you?”

We tucked him in on his favorite side when we left.

Trevor is ready for superbowl sunday with his football burp rag and pacifier

Trying the “Myspace Angle” for a picture to minimize the cheeks!!

Smiley baby!

Gramma tried to comb his “hair” into a mohawk after his bath!!

Today started out with a visit to Brendan. Since Bill is feeling better, he stayed home with Trevor so that Gramma could go with me to the hospital.
Brendan had a pretty good morning. He was agitated a bit when we got there, but once I picked him up and settled him in on my lap, he was happy for hours. He really likes to be sitting up. I think this lets him be the most aware of all the things going on around him, and it lets his back get some cool air on it.
They have ordered him a CT scan of his chest. The doctors are just not happy with the chest x-rays and don’t feel like they are getting enough information. They are going to have to anesthetize him, which means no food for at least 6hrs ahead. So they put him in for the CT to be done at 8am tomorrow.

This is a pretty typical Brendan look

Sitting up the way he likes, the pacifier makes a good place to help hold up his head!

While he was sound asleep, I finally was able to trim his long nails!

He got to spend some time with Gramma too

Trevor had a good day with Daddy. He gets lots of extra attention when Brendan is not around to demand it. There is a running joke in the house. Trevor can be absolutely sound asleep, hanging like a limp noodle in your arms, but the moment you try to lay him in to his bed, he wakes up. Or you put him in bed and within 3 minutes, he is wide awake, talking and asking to be picked up again with his sad little cries. So Gramma says that there are ants in his bed that tickle him when he tries to sleep and then she rescues him!

I don’t know, I don’t see any ants.