As much as we love Brendan and hate to say it, that baby had a funk about him. Not being bathed ever in his life other than sponge baths with washcloths – it tends to make a baby a bit sticky.

We had to change his whole ostomy pouch and base out today, so what a perfect time to dunk him in the sink with some bubbles. He was amazingly tolerant of our poking, prodding and peeling. And then he LOVED floating in the warm water.

So much skin! Just a little tape left.

One piece footed jammies with snaps are just about all Brendan can wear at the moment. But is that so bad?

This clothing thing is still new to him

Having a bath really relaxed him, so it is nap time.

Now he is all clean and pretty to go to meet his pediatrician today. We received the delivery of his travel O2 bottles in a pouch so it should be too bad. I hope he doesn’t get shots today, he is having such a nice calm day so far!

What a Christmas present and a way to wrap up a week! It has been a HECTIC day, so much to remember, a lot of worrying, tons of phone calls. We had to call three separate companies to get scheduled for deliveries of home care supplies. We are trying to figure out our schedule and how to set up the rooms. The next week will be a bit chaotic. But all that matters is that

Great-Grandma bought them this amazing travel system with the car seats that snap on to this double stroller. It is the easiest click and go thing, and we affectionately call it “The Whale” when it is all together. It is really large to push around, but it has a ton of storage and that is what we needed today! The belly of The Whale was packed.

Brendan color coordinated with his carseat in his ducky pajamas, Gramma would be proud! His faithful guard dog is riding with him on his journey home.

Trevor is not ready to watch Monday night football, he is just due to eat and the football binky keeps him diverted.

The whale loaded for departure

Through the lobby and out the door!

And in to the car we go!

Two babies on the dining room table, I could just eat them up!

Brendan is home!

This is his spot right now, on the couch next to me when I am not holding him. He can be elevated for his feedings and the O2 concentrator is behind the arm of the couch. The machine makes noise like Darth Vader and is about the size of a dorm fridge. His oximeter is on the floor.

Despite a bit of flustered preparations when we got home, we are doing OK tonight. Bailey brought us a delicious home cooked meal and we could not be more grateful for not having to think about cooking.

Brendan needs to eat eat eat and grow grow grow so that he can be strong for surgery. We need to keep him comfy and stable and hopefully we will not end up back in the hospital before February!

As promised, here are the photos from yesterday:

Just put that baby anywhere! Trevor and Bill visited in the morning and dropped me off for my overnight.

He is either stretching or dreaming about sweet jumps and applause.

Brendan takes his car seat test

No dips, blips, or flips, he passed!

Back to bed for his last night for this stay!!