Week 20 – Day 1

Bill and I carpooled to the hospital today, he dropped me off and went to the office. There was nothing too new on rounds for Brendan today, there will be a chest xray tomorrow to see how his lungs are doing. Getting blood last night definitely helped keep his sats up better today. Overall, Brendan seems to be in a better mood, with less pain than before. But his work of breathing has increased and his need for drugs has not gone down as much as I would have liked.

The nurses and I improvised a tummy time configuration that let him sleep a few hours in his favorite arm dangling position with his knees tucked under.

The physical therapists want to see Brendan have more arm and hand freedom so that he can work on his reaching/batting and getting to know his hands. I think Brendan is pretty happy with this. (the duck quack sound in the middle of the video is my dumb phone getting a text message) Of course that means more attention and supervision when he is in bed awake, and less getting anything done while I am at the hospital.

Trevor got to spend the entire day with Gramma, catching up on all they had missed.

4 thoughts on “Week 20 – Day 1

  1. I’m glad your mom is back for that extra help. Love you all. I’m still reeling from spending time with then both this weekend!

  2. Good morning from the East Coast! Sooo glad that Gramma is there! Time for “super-spoiling” and that much needed extra set of hands. Add a hefty dose of love and caring…can’t do better than that! The boys look wonderful, thanks for sharing! Love, prayers and tons of hugs! 🙂

  3. Is that the position you land in after the “happy” drug lung treatments?
    I am glad Brendan is being expected to do some real baby things. He must be itching to show up Trevor!

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