I am happy to report that Brendan is feeling much better today. Heart rate is still slightly elevated, but his mood is definitely improved. He was ready to play with his little fishes again.

Bill had lots of business and errands to attend to today, so the boys and I were home by ourselves for about 5 hours. I was running around like a fool trying to take care of everything. By the time Bill got home, I had changed my shirt twice and the house looked like a tornado passed through! He walked in just in time for me to pick up Brendan and have his ostomy base pull off and poop start leaking out. Turns out Brendan had been picking on the tape, his skin was all scratched where it was leaking. And as we are getting ready to clean him up, he kept trying to stick his thumb under the tape and in to the poop.
Getting Brendan in a bath, fixing the ostomy, changing trach ties, retaping his face.. an hour later he was tucked in to bed, exhausted.

For all of the madness and noise and mess and frustration today, I am just reminded of how much worse it could all be. The only thing I really have to report on the blog today is what Trevor is eating. If the blog post is not packed with action involving hospitals, things are pretty good!

So speaking of Trevor eating, he had some melon today.

He tried it…

…and he liked it!

He was a bottomless pit today, he ate a big dinner and was asking for more. He is growing too fast!!

Brendan is trying something new too. Once he has his surgery and his feeding tube gets moved from his nose to his belly, he is going to have to wear a onesie or something in order to keep him from pulling it. We are going to try some clothes every day to get him used to it now. He just still overheats so easily!
But he sure does look so cute!!

He has to sit in the high chair with a cold pack behind his back so he doesn’t melt.

You can’t have a twin and not wear coordinating outfits at least now and then!

“Seriously, where is lunch!!?”

I hope for a peaceful night up with Brendan. The new camera system was so handy today, I don’t know why we didn’t do it months ago. Instead of sitting by a sleeping baby all night, I can get some things done!