Wowzer! It was an exhausting day. My feet hurt and I am so ready for bed!
Trevor woke up at 4:30am. I got him to relax and go back to bed after about 20 minutes but then I could not go back to sleep.

Brendan had a cardiology appointment first thing this morning. So I got Trevor through breakfast and had just enough time to get him dressed. Brendan’s nurse and I got the car packed and the equipment all together. Brendan handled the car trip much better than I expected. He cried a bit getting in to the stroller at the doctor’s. I was so worried after the meltdowns while trying to take walks that this outing would be really bad.
He saved the EPIC meltdown for when they were trying to do his EKG. He does not like to be held down so he went in to a total rage. Who would want all those stickers and wires on them?
The test results were useless with that much fighting so they stepped out to let him calm down. Of course, he wore himself out so he fell asleep. Then they were able to do a perfect EKG.
He woke up for his echocardiogram and although he was not thrilled about it, he did sit still and let them get really good pictures.
The doctor was so very happy with Brendan. He said Brendan looked amazing, his weight was 25lbs and wonderful. His heart is strong and the doctor “couldn’t be happier” with the function. No valve leak at all, no coarctation of vessels, no weak squeeze, good pulmonary arteries, good Glenn flow. A+++!!
So we are on “coast and grow” mode to try to make the strongest lungs possible for when he has his next open heart procedure.

Trevor was such a good boy at the doctor’s office. He stayed in the stroller in the beginning and then I had to hold him the rest of the time. He squirmed and wanted to get down a lot, so my arms and back are exhausted. But he didn’t cry.
We were there so long, we got home late for lunch so Trevor got cranky. Both boys were so tired!

Brendan wasn’t real keen on sweet potatoes, but to be fair, he didn’t have an easy morning so we will have to try them again.

“Psst, Trevor. Gramma tried to tell me these were good.”

Trevor liked them and thought they would be good on his face too!

The boys got in a short nap and then Brendan had Occupational Therapy. He did a very good job with his therapist today. He showed her all of his good tricks. Trevor even got a deep pressure massage so that she could train me how to do it with Brendan. He liked it!

Trevor had to rearrange the diapers for Brendan

Trevor practiced a LOT of walking up and down the hallway and outside on the front patio. (another reason my back is sore!) But he still likes to walk around on his knees!

Tomorrow is our recovery day, no appointments, no therapies. Just laundry!