Year 2 – Week 40 – Day 1

Brendan had a decent night of sleep overnight. He had several times where he woke up needing suctioning, and many times where one of the monitors or machines alarmed or beeped and woke him. He had a great nurse and RT in the CVICU that took care to let him get as much rest as possible. They helped me get a few scattered hours of sleep too.

Brendan woke up this morning still seeming weak and tired but he was definitely improved. As the day went on, he took two more solid naps and just kept steadily improving. He started taking interest in his favorite things again, like his sport-top water bottle.

He even started teasing me with little almost-smiles.

He played with his favorite apps too. I was just happy to see him alert.

He even broke out super-concentrating face

Hour by hour, he kept improving. This is how he tells everyone that he is ready to go home – standing/cruising around in the crib, and suctioning his own mouth.

After trying to do a day of work and watch Trevor at the same time, Bill came to pick us up to go home. Trevor immediately went for the remote control.
“Do they at least have cable in this joint?”

He also sorted oral care kits

Brendan isn’t in the corner because he is in trouble, it is just a tight fit with The Whale in the elevator!

Trevor had to bring his own ride

We’re outta here!

I think I am starting to hallucinate because I am so tired. My eyes want to cross. I hope Brendan has a really good day tomorrow, we are so glad to have him home again.