Pictures from yesterday:

Bill put up the Christmas lights on the house on Sunday. Trevor saw them on Monday and said. “Christmas lights? That means it is Christmas time?” I said, “Yes, it is the season”. He says, “Now I can play with the Christmas train!”
He has quite a memory. He often sees the Christmas train on the shelf in the garage and occasionally asks to play with it and I tell him, “It isn’t Christmas time.”
I couldn’t say no this time.

Today Brendan had his EKG/Echo and checkup with the cardiologist. He gets an A+ on everything. He screams and fights the tests, but he was otherwise a very good boy. I got him his Paw Patrol buddies as a reward and he was one super happy camper. He kept giving them hugs and kisses.

Then he put his trach cap on his big toe and bit it off.

The doctor talked about Brendan’s long term plan too. He hopes to see the trach come out next summer and then they would consider doing his final big open heart surgery the following summer (2016). There is so much that could change, but it was nice to have a tentative plan.

The bad news to share is that it looks like we picked up another viral infection this weekend. Brendan had a rough boogery morning and has an elevated heart rate while sleeping. This evening Trevor had a 101 degree fever. 🙁 I hope they can shake it off quickly. Bill just started an antibiotic to get rid of his cold that settled in to his chest and won’t go away. So far I am feeling fine.
I don’t want a sick-kids holiday!