The good news today is that the chest xray this morning did not show any signs of pneumonia. The bad news is we still have no idea why Brendan needs so much oxygen. There are no other clues that I can see. I hope he continues to improve. We got home from the imaging place in time for speech therapy. She went easy on him today and they played fun car games and bubbles.

Trevor and I ran a few errands. Then he just had to go outside and try out his new sandals. The old ones were getting too small, and he can not go check the mail and watch for garbage trucks without shoes on the super hot pavement! It was 100 degrees out today.

Running in sandals, check.

Trevor has become fascinated with his own shadow. He also likes the shadow of the mailbox and goes to stand on it. He also likes to run all around the driveway, occasionally stopping to wave at me and smile. He can be so cute!

Brendan was super cute today too, just doing his own thing.

My friend Virginia and her daughter Tammy came over tonight and brought dinner and dessert. Thank you both so much! After dinner, Trevor was all about having company. He was a real flirt.

Brendan must have thought they were just more therapists, he was unsure of company and would cry if he got too nervous. (and stop instantly if I picked him up!)
Trevor was like a little puppy, coming around to be pet.

I am sorry I didn’t get a better picture of the boys with their visitors. We enjoyed the company and now we are getting ready for another busy weekend.

Today felt more like a “normal” day for our household, except Brendan’s numbers are still poor. We turned his oxygen down a little yesterday and ended up having to turn it back up. He is maintaining mediocre oxygen saturations on still double the oxygen. We get a chest xray tomorrow, but I am not expecting that to give us any answers. It is very frustrating.
Brendan himself is active and happy. His nose runs a little but he had no throwing up all day.

We had typical antics.

Brendan is getting more confident with cruising the furniture. He is transitioning across gaps now. He is also climbing more, but he makes bad choices and needs help a lot.

He was a super crab tonight. He had managed to steal Bill’s glasses but Bill took them away.

Brendan’s tantrums can be very dramatic

Trevor has to get in on it too

This is not the angry glare face I am trying to capture, but it is closer.

Haha! Just acting!

Our calendar keeps filling up with appointments for this month. It is going to be busy busy busy.

Today started out with a bit of drama!

This is Brendan’s feeding tube on the kitchen counter.

The button is the part that was on his belly, the balloon is the part that was in his stomach that holds the whole thing in place. The long tube goes through his stomach and in to his intestine. Or it did until the food line got caught in the recliner chair. POP! Out comes the whole contraption.
In the past, we would have been crying because placement of this tube has to be done in interventional radiology at the hospital and we would have been packing our bags.
But since Brendan has done super super well with food going to his stomach, we were able to put in a new button at home (one that does not have the length of tube past the balloon).
POP! New button in place and all was well.
We were waiting for the day that we could change this out. The new button is so much better. It is smaller, it can be rotated to be cleaned. The old button was leaky and held open the pyloric valve in his stomach with the long tube. Hooray for accidents with happy endings.

Trevor slept in and missed all the fun. He woke with a little bit of an attitude.

It was 18-month checkup day at the pediatrician’s office. We were in the Dr. Seuss themed room today.

Brendan is feeling slightly better again today. We are slowly making our way back to healthy.

Trevor is filling out the survey about development.

The doctor said that they were both amazing. He says that Brendan’s lungs sound beautiful and clear.
We will get the follow up chest xray on Friday to be sure everything is improving.

18 month stats:

Brendan – 33 inches tall, 25lbs 7oz, 19.5 inch head
Trevor – 34.3 inches tall, 25lbs 2oz, 19 inch head

They didn’t get shots but they got a TB skin test and came home with a bandaid on their arm. Brendan kept trying to shake his off. Trevor just picked his off.

Trevor and I ran to the store because we were almost out of milk. Trevor has these new faces that he makes for me that are quite funny. He has one that is a “yeah, right” look, he has a very angry scowl that he used on the nurse with the needle today. Then he has this one, the “I don’t want to be here” grumpy face.

I have to try to catch the angry face because it is a real award winner. He is all full of attitude lately!