Year 2 – Week 29 – Day 5

I only have a couple of pictures today because I wore the camera out yesterday and forgot to charge the battery!
Brendan had a great day today. He stayed on 3L all day and even wore his PMV for a couple of hours. It is so good to hear him talking again!

He is showing off some sweet numbers!

He is also holding evidence that Trevor has been raiding drawers in the bathroom

He decided that Trevor’s cheerio snack should be on the floor

And he is picking them up and pushing them through the holes in the workbench

Trevor plays with Brendan’s food too, I guess it is only fair!

Trevor made a trip to Home Depot today to get some more supplies for the new room. It is coming along, if only there was just more time in the day to work on it! Bill is painting inside tonight. Tomorrow is a busy Tuesday!
PT, garbage truck, visit from state reps to review nursing hours, OT, plus normal craziness.

I will just wrap this post up with a little video cuteness!

Year 2 – Week 29 – Day 4 – Happy Mother’s Day!

There are TONS of pictures today.

First I want to wish my mom the happiest Mother’s Day. I am also excited to say that this is the first year that all of my sisters and I are celebrating the joy of motherhood. I love my nieces and nephews so much! Happy Mother’s Day to my Grandma, my sisters-in-law and all my friends and extended family. I hope it was a great day for everyone!
Even though I had to do things like clean the bathroom and change a trach today, I am still so appreciative of today. Last Mother’s Day, we spent the majority of the day at the hospital. We have come so far!

The boys were VERY cranky this morning and I thought they were going to just be mean to me all day with their whining and crabbiness. But after they got up from their naps, they were silly, happy, and ready to play! It was hot outside so we set up the baby pool for Trevor.

Trevor has now completely overcome his fear of the grass and will walk around in it just fine.

Brendan says, “I am staying dry in the shade!”

He had a great afternoon and we were able to turn his oxygen down from 4L to 3L!

“I am going to climb this rock wall!”

“Or maybe I will just go up the slide!”

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I really enjoyed having all my boys playing outside today!

Daddy ATTACK!!

Trevor goes down the slide all by himself now, he doesn’t want help!

Brendan loves to be in the castle

And sliding!

…when Trevor is not in the way!

Inside, Brendan cruises along all the furniture. I am even getting him to reach out and transition to me.

I realized right before bed that it was Mother’s Day and the boys didn’t have any pictures with their mother! I just used the “Photo Booth” app on the computer to try to get some pictures but the boys were less than cooperative! Trevor wanted nothing to do with it, while Brendan found the whole thing hysterical. He loves seeing himself on the screen!

I hope Brendan continues to improve. When we put him on his vent tonight, he was making me giggle with all of the singing that he was doing. Instead of letting the vent fill his lungs, he was blowing the pressure out of his mouth and making the funniest sounds. He is finally in bed! Good night!

Year 2 – Week 29 – Day 3

Aside from things not being quite right with Brendan, it was a nice Saturday. Bill was home all day and was available to help wrangle the crazies. I did some cleanup projects and some creative stuff too, and chased the crazies all over the house.

Brendan was wanting to explore but he reached maximum extension on his mist collar.

We put Brendan on an HME with a nice long oxygen line and just let him go go go. The pair of brothers went on quite an adventure together. They started in the hallway and did some maintenance on the motion activated lights.

They tried to make an escape out the dog door until the dog came to play peek-a-boo

They messed with the vacuum

They took apart the cabinet full of tater tots

“C’mon, Trevor, what is next?”

“Try and do this, Brendan”

Brendan did this all by himself, and every day he is getting more bold about trying

They finally took a break together

Then it was back to the fun. They both LOVED the suitcase full of frogs.

Trevor and I ran out to Sams Club to buy dog food and while we were there, I got suckered in to buying him this cute book with firetrucks and lots of little dogs. He loved it so I made the mistake of letting him hold it in his car seat on the way home.
By the time we got to the house, he had chewed through the corner of the book and had little bits of paper spitwads everywhere. He is not a baby, he is a little goat!

He was also very naughty in his bath tub tonight. He would NOT sit down and he had a lot to say.

We tried to turn Brendan’s oxygen down again today but it was a no-go. He is still on 4L. It seems like he has been sick for so long, but it has only been a week ago last night that he showed his first symptoms. Hopefully this silly mood and energy will soon be followed by better numbers.

A special happy anniversary goes out to Great Aunt Letty and Great Uncle Rich today. Congratulations and happy 45th!!