Year 2 – Week 17 – Day 1

Happy Valentines Day!

All four of us went on a super romantic outing today.. to the GI doctor’s appointment. Brendan was not thrilled to be in the stroller but he handled the whole thing very well. Trevor was all crazy getting tangled up in wires and trying to eat oxygen tubes.

Brendan only weighed 25lbs 3oz on the scale at this office, which is more believable. Still, the doctor said that he is getting too big too fast. They do their best to calculate calorie needs but Brendan is getting a bit too chunky so we are going to scale his feeding back a bit.

Brendan says, “What? I can’t even pinch an inch!”

We told him this means he has to lay off the sugary drinks!

Over the next few weeks, we will be tweaking Brendan’s feeding schedule so that he will actually have four hours a day off of his feeding pump. We are excited for him to be so “unwired”. We also have an order to go back to radiology to have the wonky weird feeding tube replaced with the original low-profile button. It would be a great thing for his mobility, we just have to get brave enough to take him for the procedure.

The appointment was exhausting, Brendan fell asleep in the car on the way home. Trevor ate lunch in the car on the way home!

I tried a couple different stores and I could not find a cute valentines day outfit for boys. It was all frilly pink girl stuff or it was stupid. But the boys got a gift from Brendan’s nurse with superhero stuff!

Trevor wore red with firetrucks but has his cool new batman t-shirt to wear tomorrow. He wouldn’t pose for pictures with his hat.

We cooked dinner at home. We made mushroom & swiss baked chicken. Trevor loved it!
I feel like Brendan after a day with doctor and travelling and mixing up the schedule which means cranky babies in the evening, I need a nap!!

Year 2 – Week 16 – Day 7

Brendan had a really rough morning today. We believe that he just gets irregular sleep and is so tired. But with the sun up and Trevor out and about, he just can’t sleep in. Once he gets past all the trouble in the morning, he takes a nap and then wakes up feeling more like himself again. He was smiley and playful all afternoon.

Trevor went to Target with me this morning. While I wasn’t looking, he slipped a little toy in to the shopping cart! He was going to buy it with his Valentine money. He was excited to bring it home to play with Brendan.

Brendan was very interested.

He really, really likes it!

Brendan ate almost 5 bites of sweet potato-corn blend today! Trevor ate leftover spaghetti.

While Brendan relaxed and got a bath, Trevor got to go outside and play. He loves to go outside.

He did not want to ride the scooter, just push it!

Brendan spent the afternoon with his new best friend.

Me: “Trevor, don’t stand on the couch!”

Trevor: “This isn’t standing, it is leaning!”

Does this look like the face of a baby that breaks rules?

“How about lunges, are they OK?”

Trevor ate spinach white pizza tonight and loved it. This kid loves his greens.

Trevor’s latest favorite thing in the evening is “Daddy Tunnel”. Of course, Brendan finds the whole thing hilarious too. He will be joining in soon!

Year 2 – Week 16 – Day 6

It was a hard day on everyone today. Bill had to work from home because so many people in his building are sick. Our day nurse and I had to take Brendan to the doctor for his monthly Synagis injection. We thought since it would be a quick appointment that we would leave Trevor with Bill.
While we were at the doctor, we remembered that Brendan still hadn’t had his vision screening because the last two times we were there, something prevented it. (Brendan sleeping and machine broken). They use this fancy handheld computer that does an analysis and measurement of the eyes. We waited for 45 minutes while the nurse tried to get it to measure Brendan. It kept saying she was too close or too far or his pupils were too small (too much light) or he would move or she would move. It just wasn’t working. We moved to a different darker room, we got his shots done, we tried again and again. I was just about to throw that device, I was watching the clock thinking that Trevor would be getting hungry. Brendan was so tired.
We finally did get a measurement (I took the device and held it myself, must be my steady camera hands!). It came back with a failure/out of range. His right eye is measuring a bit hyperopic/farsighted. All this means is that now we have to take him for a full eye exam with a specialist.

I almost forgot to mention that Brendan now weighs 25lbs 10oz!! He is less than a pound away from overtaking his cousin, Caleb now! He sees the GI doctor on Thursday so we will see what he wants to do with Brendan’s calorie intake.

We did finally get home just in time for oxygen refill delivery. The boys both took naps and got up just in time for occupational therapy. Brendan cried through the whole thing. He was just so tired! I don’t blame him, I was wiped out too!

He is still a drool factory, I was able to look in his mouth and he has a huge molar trying to break through on the bottom right and one that is just broken through on the top left. Poor baby!

The nurses do several routine assessments every shift including taking Brendan’s temperature. Trevor LOVES the digital thermometer and always makes it known that he wants it when he sees it in use.

He’s just going to take it!

Saggin’ pants, wrench in hand! He just needs a sink to work on!

Brendan gets to be the cute little pumpkin tonight!

He is going to drill those teeth out!

Trevor went to bed easily and Brendan stayed up until I was done with Trevor. Brendan fell asleep around 7:30 and then woke up again at 8 ready to play. He is tormenting Bill now by constantly trying to chew on his shirt collar and get it all stretched out and soaked in drool. He will accept no substitute!