Week 2 – Day 5 – Quick Update

I haven’t been to the hospital yet today, it is tough trying to balance spending enough time there with the boys and trying to get work done around the house to finish getting it ready for homecoming. Bill is working like mad trying to finish grouting the master bathroom so we can have that room functioning again.

I did call in and got the update from the nurses. The boys are doing just fine today. They are back to giving Brendan a little milk in his belly, just 5cc every 3hrs, and he has not needed any pain meds this morning. The nurse heard that they should be moving him today, most likely on day shift (prior to 7PM) but she hadn’t received the official order to start packing him yet. She promised to call me if she got any more news. I have some errands to run and hope to get over there before they send him.

I have one picture to share from last night’s visit. The boys’ cousin, Caleb, is 5 months older than them and has just moved up to wearing a size 3 diaper. Just for comparison, I brought in a size 3 Huggies to see how big it would be next to Trevor. It is about exactly the same size as his entire torso! To be fair, Caleb was a full term baby and he weighed 6lbs 4oz at birth so he had a head start!

Here’s my adorable nephew, Caleb

Week 2 – Day 4

Medical Update

Nothing really to report on the medical front, we are waiting for news on when we are moving and still waiting to hear on a surgery date. Brendan is stable, he just needs his lungs cleared pretty frequently. They were doing some blood work to make sure that the antibiotic they started was present in his blood at ideal levels. He vigorously protested when they tried to poke his heel for blood. He was crying real hard and not a sound comes out.
Great news is – I got to hold him today!!! Granted, I had to hold him and his whole bed-nest and all his wires at the same time. But, I got to rock him and talk to him for about an hour, and he slept very soundly. I am glad we both got some cuddle time in before he went for his surgery.

I missed the mess-with-Trevor times today, he was so sound asleep I wasn’t going to take any pictures. Bill and I will be going back tonight and I will take some then. The nurse told me that he took 20cc from the bottle this morning, but then on the next feed time, he didn’t want any. He will learn.
She also said that in order to go home, he has to go 5 days with none of his little breathing episodes. He is definitely improving on this too, so hopefully when he is eating right, that will be gone too.

I drove past the other hospital on my way home today. It is exactly 2 miles away from the first one, so it won’t be so bad going between them. I knew they were fairly close, but 2 miles is good!

Pictures Update!

Brendan has better color and looks a little more “filled out” today.

It only took 3 people and a well coordinated effort to get Brendan transferred to me, but it was worth it.

Week 2 – Day 3 – Update 2

A little late in posting, just a little more update from yesterday. We were told last night that Brendan will probably be moved to the Children’s hospital this weekend, with surgery early in the week. He numbers were much better in the afternoon and he is still stable.
They tried to put in a new PICC line and had to give up because they couldn’t get it threaded. It sounds like poor Brendan inherited my veins, they said they were squiggly and branchy – which is exactly why I have a thousand bruises on my arms from trying to start IV’s and draw blood.
He has his current PICC with one port still open, and he managed to kick out the line in his right foot, so he has a line in his wrist for meds. When he is sedated for surgery, they will probably try to put in a new line.

The great people at my office threw me a shower in the afternoon and it was awesome! I will post more pictures later today, but here is some of the adorable footwear the boys picked up:
Lions for one, and leopards for the other. Brendan has his feet covered in connections, so he will have to wait to try them on.

They are a just a little big!

Trevor is still practicing, he only would take about 8cc and then wanted to fall asleep.

I am headed back for a visit in a few hours!