Year 4 – Week 7 – Day 6

It seems that Brendan has made a turn in the right direction and is finally improving. Now everyone else needs to stay healthy!

We had a checkup at the GI doctor this morning. It was a routine visit, and Brendan is doing well. He isn’t gaining weight as fast as they would like, but he was at least up a pound since his last visit.

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We ran into Santa Claus in the lobby. His bowl full of jelly belly must visit the GI doctor often. 🙂 Trevor reluctantly sat with him, but the lighting was terrible for my cell phone camera.
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Brendan wanted no part, even when bribed with a candy cane. He especially was all done when Santa let out a hearty “Ho Ho Ho”
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Year 4 – Week 7 – Day 3

I don’t have any pictures for tonight, but I knew people would be checking in on Brendan. I hate to update this way, but he has been very sick the last few days. We went all year fighting off colds and such without having one of his really bad spells. The last few days he has needed a lot of oxygen, up to 5L at night to barely maintain his sats at 78-80%. He has struggled with his food and keeps popping fevers up to 102.
Keeping his oxygen on him all day now is so hard because he is used to not wearing it.
Trevor slept in until 9:50am yesterday!! He woke up spazzy and hyper, back to normal Trevor. I still have a nagging cough and Bill is totally recovered.

The weather was so beautiful tonight, we took the boys to Zoolights. They lounged in their stroller and we walked around the loop to see all of the lights. It was very relaxing and the fresh air was good. Brendan kept his oxygen on and Trevor only got out of the stroller to ride the shark on the carousel.

I hope to get back to happy cute pictures soon. I am super tired.

Year 4 – Week 7 – Day 1

We had the HopeKids Christmas party to attend today, but I wish we could have had a few more days to recover. Fortunately it was really warm today. All Trevor could talk about all day was going to the party and playing in the snow.

We got there in time to watch the big trucks making all of the snow
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Then Santa pulled up on his AZ style sleigh
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Poor Brendan was so tired. He has been feverish on and off today and coughing so much.
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We rode the little “train” around the parking lot
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Then we had to get back to check the progress of the snow
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Then Trevor got “the hammer”. (We ended up playing “Hammer Game” all night all the way up until bedtime. Hammer game is bopping each other and fencing until you can knock the hammer out of the other’s hands and yell “disarmed!!”)
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They hammered all over the fire truck to “fix it”.
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Not in a fixing mood
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Back to the snow. Once they stopped spraying and all the kids got in the pile, it got really rowdy.
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Time for a cupcake
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The little train rolling around in the background
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Oops, sat in the snow. Not thrilled.
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Trevor got to spray the real fire hose. He needed them to spray the blue frosting off of his face!
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After we got home and tried to make some dinner, Brendan’s fever reached 102. I really hope he gets some good rest tonight.

Oh, and I almost forgot yesterday’s meeting of the pre-school teacher was very frustrating. I won’t judge after the first day, but I was expecting something totally different. I hope that Brendan will benefit and this won’t be a total waste of our time and something else to stress about scheduling.