Friday night should be good, but we have another weekend with no night nurse so we are staying up two nights. On top of the week we just had, it is going to require a lot of caffeine. We did have a day nurse today so I got some things done that have been building up but there is never enough time. I didn’t get a nap in!
The boys have been excellent, and we are so thrilled that Brendan is doing so well. He sprinted for 5hrs today, 4hrs on his mist collar and 1 on his HME. We have resumed the drug weaning process, but we are taking things very slowly so hopefully we will not see such a struggle.

Fishing for cute babies, looks like we caught one!

There was lots of busy playtime today. The jungle is awesome.

Gramma was doing laps on the patio with a cranky Trevor today, and someone popped out of the house for a surprise!!

Brendan is outside!!! (and wearing a cute little hat)

His HME lets him be so much more mobile and I think he likes it! I know I do.

He knows he is cute in his hat and diaper combo

Tonight it was Trevor’s turn to play the baby typing game. He tries to bite the computer too much though.

Today Bill went to the office and Gramma and I played with the boys. It seemed to be a very long day! Both of them were very busy, constantly on the move.

They ate lunch together. Gramma even gave Brendan a few bites of Trevor’s sweet potatoes. He was resistant at first.

He did well though, he tasted and ate the tiny little bites!

Every bite Brendan gets is one less bite for Trevor

Besides having sweet potato chin, Brendan finally broke through those big top teeth!!!!! Once the skin broke, the teeth were almost totally uncovered. He was proud. That makes it 5 teeth for Brendan, 3 for Trevor!

Trevor thinks Gramma was paying too much attention to Brendan

He says “You can take pictures of my teeth! They are sharp!”

Growing in teeth is tough

Once she pays attention to Trevor, Brendan makes “pick me up” face

Brendan loves his little rocket dude

He must have had a silly infusion at the hospital, he has been so funny since he has been home. And he stays up real late too even after short naps today.

Trevor thought I needed a little extra flavor in my coffee today.

Even though the day consists of constantly chasing babies and it is very exhausting, we are all so thrilled to see them both doing so well.

Something neewwwww…
Brendan received a package in the mail today that we we have been waiting for. It contained a bunch of HME’s (Heat & Moisture Exchangers). Instead of wearing the mist mask over his trach while sprinting off of the vent and being tied to the big loud compressor, this little thing slides over his trach tube with an oxygen line attached. It just has a filter that traps the heat and moisture from his exhale. It makes him portable!!

The direct O2 line makes it so that he needs way less flow volume, so we can actually use the little tanks to carry him around. (little tank not pictured) Trevor gets stuck in baby jail while Brendan got extra attention.

Trevor says, “Brendan, Brendan, Brendan!” and bounces on his chair backwards

Brendan had roly-poly time on the floor for a while today. His incision is looking much better today, we just have to keep his fingers off of it.

He sits SO much better with the ostomy bag gone. He can’t sit unsupported yet, but his posture and effort have improved without that mess in the way

Trevor figures he can gnaw his way out

To top it all off for poor Trevor, Brendan got to play in the jungle.. and he loved it!

To help Trevor adjust with having his brother home again, he got to have a second bath in the big boy tub. He just doesn’t know how this blue star thing followed him in.

Trevor put his face in the bubbles

He knows how to turn off the starfish

Both boys got to do a little typing, but Trevor didn’t want his picture taken. I sure wish they could do the blog for me!