Today was another roller coaster day, filled with silliness and cuteness but also with vomiting, tears and frustration. I don’t take pictures of the latter, so here are all of the cute pictures we captured today.

Brendan gets to eat breakfast with Trevor. Today he played with bowls and spoons and oatmeal and prunes. He even got some prunes in his mouth but mostly on his tape and tubes.

The boys are saying, “You are interrupting”

Trevor says, “Once I was only this big…”

“…Now I am THIS big!”

When Brendan was feeling good, the boys took a journey together in to space.

Trevor was helping Brendan get the most out of space!

Good thing there are crabbies in space. Trevor wiped out and they had his back

Brendan thought the wipeout was hilarious

Then Larry the O2 guy showed up for refills and we had to distract Trevor while all the clanging and banging noise was going on.

After all that play time, Brendan went to bed and Trevor offered to cook dinner.

Hopefully both boys have a quiet, restful night. I heard from the GI doctor’s office that surgery is going to either be at the very end of July or early August at the soonest, so we have some waiting to do. That just means time to get stronger and bigger!

We hope that everyone had a safe and relaxing 4th, Happy Birthday America!

We are lucky to have Gramma still here with us for this 4th of July. (It was Brendan this time that twisted her arm and convinced her to stay even longer). She fired up the charcoal Weber grill and made some seriously mouth watering BBQ ribs. We also had some super good homemade potato salad! So we didn’t miss having a 4th BBQ after all, even though we were stuck at home.

Brendan had a good night and a semi rough morning, but he has managed to keep his feeding tube in place all day long. That is a very good thing!

Brendan likes to see his dogs!

He likes to sleep on his side but has trouble staying that way. This tried and true blanket sling works wonders to keep air moving past his little body and trach tubes, but keep him supported on his side.

Brendan was in a good mood most of the afternoon, he just had a few spells of discomfort and lots of suctioning required.

He loves his Jacque the Peacock

Trevor got to try something new today! It is a noodle soup puree of carrots, peas, noodles and chicken. He has never had meat before! He was a little apprehensive.

But he was hungry enough to try it

Whoa, what is this taste?

Analyzing…

And he approves!

There is nothing yet that Trevor won’t eat, we hope that he stays that way. Brendan is going to give us enough eating trouble for the whole family!

Hopefully soon, we will hear back from the GI doctor’s office about surgery scheduling. I have so much anxiety about Brendan going back to the hospital, but I am so eager to get this huge milestone behind us!

This morning should have been simple. Bill took Aunt Shannon to the airport and then went to the office. We had a nurse working today and I was able to get a lot of cleaning and organizing done (really just scratching the surface of the big project). But then for the 3rd time in 3 days, Brendan threw up his feeding tube. I wish I could blame his little hook fingers for pulling it out, but it is not his fault. He just retches so hard when he gags that the tube comes up from the back of his throat and then out his mouth.
We had to put him through the ultimate torture AGAIN and put a new tube down. In order to try to prevent being four for four, we used a different type of tube. It is not quite as soft and flexible, so we are hoping that will help it stay down.

He promises to be good.

Brendan really loves for Trevor to spend time with him, especially when Trevor is talking.

We cleaned out the pack and play today and Trevor got to play in outer space again. He learned that if he rocks on his hands and knees, he can get the whole pack and play to sway and rock and all the toys go crazy too.

Trevor found his mirror baby, Rovert, several times in space today.

Trevor slept through the night again last night, I hope he does the same tonight. Brendan is getting his nights on a better schedule now also!