Brendan had a good morning. He needed suctioning a lot, but seemed to be in a good mood.

He played with toys

He tried to talk to Gramma

Since he is the big brother, he has to try to do everything first. If you rub his little gums, you can feel the little teeth under the surface. Nothing has come through yet but they are right there!

Trevor was mostly good today too! He is silly and loud.

You put your right leg in…

And you shake it all about..

That’s what it’s all about!

Silliness

To end the night, Gramma helped to give Brendan his sponge bath. He really enjoys getting fresh and clean.

For some reason after his bath, he got very agitated and would get upset very easily. He cried pretty hard and got his heart racing. Gramma has been holding him for 45 minutes trying to keep him calm and comfortable. Hopefully he will sleep like he normally does at night. We do not have a nurse tonight, so Bill and I are splitting the night. I’ll be up until 2:30am. Bill went to bed early and will get up at 2:30 to let me sleep.

We hope Brendan feels better in the morning. This could be more medication withdrawal he is going through.

Happy Friday! Saturday to most who read the blog in the morning. Monday to the big crowd that falls off over the weekend!

Today was about playing

Brendan’s color was better today, as was his mood.

Trevor’s silly level is on the rise, he is feeling a bit more like himself.

Brendan isn’t sure what to do with the chameleon

Oh he lights up and sings!

Honey, I shrunk C3PO. Where could he be?

He’s lounging on the O2D2

We work with Brendan every day on his oral skills. After his Glenn surgery, the cpap mask and the enormous vent pressures he was on made him lose his desire to use his pacifier. Not eating by mouth all this time has suppressed his feeding instinct. It is a huge thing just to see him still willing to bite on his paci. Speech Therapy will start soon to help him not lose the ability to eat.

Brendan finds his mirror baby

Gramma bought the boys each a cute little patio chair!

Bye Bye

Overall, it has been a good day!

I seem to start every post with something about it being a big day or a busy day .. I should just consider them normal now and make a big deal if it was slow!

Today was important, we got our shipment from Tatooine. These ARE the droids we were looking for!

What you are looking at is two 41L tanks of liquid oxygen (less than -300 degrees Fahrenheit inside!). Each one will hopefully last a whole week, and then the O2 guy will put us on a delivery schedule to refill them every other Thursday. We were so excited because the O2 concentrator machine was very loud and put off a ton of heat in to the room. It is hot enough outside already, our A/C unit is working hard. I think there is a 10 degree difference in my living room now. We are so so so glad!

Brendan is happy that his corner of the room won’t be so warm anymore

He is lounging in his cool crib. He might even get to wear a onesie soon!

His O2D2’s are settled happily in to the corner of the room. They are taller than the crib!

Brendan was still having some tough times today, but he had enough happy time to get on the floor with me and Trevor for 30 minutes and play.

Did Trevor just realize that he has to share my lap too?

Trevor was a cutie today, he had a better day with less screaming.