One of the things that our speech therapist recommended for Brendan is that he should sit with Trevor at meal time, watch him eating, and participate as much as he would like to. He should be allowed to get food on his fingers and try to put it in his mouth. He should play with spoons. He should get little tastes even though he is not eating any real amount of food. I think he did a great job today, he really enjoyed it, and he may have ingested 1/4 of a teaspoon of Pear-Squash baby food and liked it.

The boys each in their cool highchairs.

Brendan was still putting his hands in his mouth a lot because his second little tooth is close to cutting through

He did a good job with his spoon, and got a bit of food in his mouth (plus some in his eyelashes and some in his eyebrow)

Trevor usually gets fed, but seeing Brendan made him want to do it by himself too!

Every day we will have to continue to work with Brendan and let him explore foods in the most positive way that we can!

Trevor decided that he was done with his mobile today and kicked it over the rail

He was just trying to make the point that his crib was too small!

Good thing that the new big crib arrived today!! Look how spacious!

Trevor making sure that he has “claimed” this crib by licking it.

Meanwhile, Brendan got a tour of the house with his mobile oxygen tank today. He was needing to escape his corner for a while. He also went to the kitchen for a nice bubble bath.
Gramma got to help with the bath and combed out his fuzzy head.

Brendan’s colon test was scheduled for Monday morning. As soon as he has that test, we will be waiting for a surgery date!

I had a hard time convincing myself that today was not Monday. It still feels like Monday and I had to look at the calendar on my computer to believe otherwise, not that days of the week matter much anymore!

The boys both had a good day. Trevor worked on strengthening his sitting and crawling skills. Brendan did super duper well with his tummy and even did a sprint today. We interviewed a nurse that may be our permanent person for weekend nights and she may even cover the 2 day shifts we need. She seems like a great fit, but we will see how she does with Brendan when put to the test.

More changes today too, of course. Back when we were planning our nursery, we ordered two mini cribs. They fit so perfectly in the room against the wall with the dresser in between. They are convertible so that as the boys grow, they become a twin size headboard and footboard and the boys could continue to share the room with regular beds.

Things never work the way you expect them to. Trevor now has the room to himself and Brendan lives full time with his crib in the living room. Trevor is growing so tall and so fast that the mini crib seems way too small for him now. He is a sleep acrobat too and ends up getting himself stuck in the rails too much. So today I ordered him a new full size crib, mattress, sheets, pads, and a mesh bumper. We will keep Trevor’s first crib to convert to his twin bed later. By the time Trevor is ready for a twin bed, Brendan may be ready to move in to the big crib converted to the toddler bed. Either way, babies are EXPENSIVE!! I’ll have to post an updated picture of the boys’ room with the new big crib and stuff on the walls. It looks a lot different now.

Trevor likes his play time.

Getting closer every day!

He still falls over on to the crabs occasionally. Bill says it is a good thing they are soft shell crabs.

Is he a little prince with a crown or a little angel with a halo?

Brendan gets cuter and cuter every day, especially since his steroid-swelling is going down more and more

He knows it and he works it!

We actually took off his tape mustache after these pictures, his little cheeks needed to heal.

Help Help! Getting attacked by crabbiness!

It was a pretty good day today. We are so proud of Brendan, he is tolerating his feeding with the new tube so well. He has gagged much less and needed suctioning less too. Not one spit up all day, and so far there are no signs of reflux. He has been a little fidgety and wanted to be held quite a bit, but with all the feeding tube stuff overshadowing everything, it is important to recognize the withdrawal he might be feeling from the changes still on Friday.
Trevor was significantly better today. Because Bill was in the office and I had to stay with Brendan, Gramma had to take him to see his pediatrician today. He weighed in at 19lbs 12oz! The doctor was happy that the new formula is helping and said we need to give it more time to work fully. Otherwise, Trevor got top marks for health in all areas.

Brendan had play time in his high chair again. A speech therapist visited this morning and gave us a bunch of tips to help Brendan work on his feeding skills before he is ready to start actually eating.

Twinkle bite bite little star

He has to make sure we are still watching

Trevor had to dress up for the doctor visit today. He is wearing his mini-daddy sport shirt.

Trevor likes to read his calamari book

“Oh, the things I endure!” says Trevor

“Just doin’ some pushups with my feet up on a crab. What did you do today?”

Sharing floor time on the new play mat!

Crabbie heads!

Brendan was happiest today as long as someone was holding him. Dad happily obliged tonight