We had a really rough morning and I am not entirely sure why. Brendan had a good night and slept well but when he got up he struggled. His sats were low, his heart rate was super high and he was frequently spitting up and choking up phlegm. I of course kept thinking the worst, that he had caught an illness from someone and that we would end up in the hospital.
He went back on the ventilator, oxygen turned up from 3L to 5L and I held him for a long time until he took a nap. Once he had his 10am medications, he took a nice nap and his sats returned to his norm, his heart rate came down. He woke up feeling like himself again.
We were able to put him back on the mist collar and he had a pretty normal day, full of smiles and play. I am not sure what happened other than possibly withdrawal. He is pretty agitated tonight, unable to just relax and fall asleep but his numbers are good.

I almost thought we would have to cancel speech therapy today. But he woke up in time to play. He just was in no mood for it and made it clear! She even got out an iPad and he was not interested!

“No.”

“No.”

“No.”

“Oh wait, I like this app.”

After about 20 minutes of refusal to engage, he gave up and decided to play with the iPad and let the therapist mess with his lips and cheeks. The whole time, Trevor was taking apart the bag full of the therapist’s stuff.

We still have not taken any pictures with visiting family, everybody is coming and going. Bill was around today although he spent the majority of his waking moments on the phone. He did have some time to wrangle babies.