It was almost a throwback to the old “Busy Tuesday” today. While Brendan played with his nurse, Trevor and I got busy. We did 6 loads of laundry and sorted the medical supply cabinet so that we could put away this month’s shipment. We got an oxygen refill, a ventilator check, and a UPS delivery. There were a lot of people coming and going!

Brendan wore his PMV all day and then did some capped time again this evening. He wore the cap for 27 minutes tonight! He probably could have gone longer but it was bath time. He freaked out getting in the tub again and that was the end of that.

Brendan knows what to do with headphones, he watches his daddy

He’s the flash with a cap!

He is sorting fruit loops

This tub of butter was empty….but not cleaned yet.

He loves his butter hat

Good thing bath is always right after dinner. It was extra soap time tonight!

I think the extra foamy bubbles is what makes Brendan mad with bathing. We will have to try tomorrow with no big foam.

There wasn’t a whole lot that was special about the day. It was a Monday which means no nurse and Bill at work (and usually very busy). I didn’t take many pictures, and the ones I did get were fairly dull.

The boys were pretty good

And then things got crazy!

We had a little microburst style storm that blew in with huge wind gusts and fierce rain. Then we lost power for about an hour and a half. Trevor had to eat dinner in the dark

He had to take a bath with a lantern. I tried to put Brendan in the tub and he was NOT happy about it. He got a 30-second scrub while screaming and then he was passed back to Bill.

The house got hot REALLY fast. Trevor stayed cool by playing in the shower with cool water.

Trevor loved running around with the cool pull-apart lantern

I was trying to take funny long exposure shots of Trevor running up and down the hall with his light. Instead of funny, I got this creepy photo!

The power came on just in time to put Trevor to bed and everything with us is fine. Our flag pole was ripped off the front of the house and blew to the neighbor’s yard. Our other neighbor’s little shed in the backyard had the roofing ripped off of it. There are tree limbs and debris everywhere and big puddles in the streets. The rain lasted all of 12 minutes, if that. The sun was back out and shining soon after the rain stopped.

The biggest damage we sustained – the electrical storm fried our wireless internet router! It might actually be a good thing because I am hooked up directly to my cable modem with an ethernet cord and my internet connection speed is about 100 times faster than our wireless. The modem got upgraded just a few months ago, but the router is 6 years old or more. We might really benefit from an upgrade.
No baby spy cams tonight, that is weird. We will have to get our wireless back up quick!

When Brendan woke up at 1:15am, the first thing racing through my head was “Oh no, not again!” He did go back to sleep at 2:30 and slept until about 4:30. Then he was asleep again at 5 and Bill came out to trade with me! Naughty boy!

You would think from all of the pictures that I have today that the boys never left their highchairs. We planned to take Brendan to the grocery store again this morning, but when we were getting things ready, we realized that Brendan’s portable suction pump was not working. It would not turn on at all!
Bill and Brendan stayed home and waited for the supply company to bring us a new one and Trevor and I got groceries. Later in the afternoon, Trevor and I made a run to Michaels too.

Lunchtime spaghetti – Trevor wouldn’t eat the noodles before but today he decided they were OK

I caught a Trevor-fish!

Trevor is doing his impression of Brendan’s maniacal laugh

Brendan just is looking sweet and innocent

Brendan has a reason to celebrate with a giant “YAY BRENDAN”. You can almost see it in this picture

He says “I am SO cute I have to pinch my own cheek!!”

What you may have spotted in those pictures is that Brendan has a red cap on the end of his trach! He wore his trach capped for TEN MINUTES. Putting the red cap closes the trach completely and forces Brendan to breathe entirely with his upper airway.
I did not do a nasal cannula with oxygen, I left the mist collar on his neck. It must have been just enough ambient O2 because his numbers were awesome (for Brendan!) We have to work on capping longer and longer every day.

Trevor picked up a few things at Michaels today. These play dough containers were 5/$1.00 and with my 25% off everything coupon, they were even cheaper! I bought a set of 5 for each of them, I should have totally bought them out and stocked up! THe lids have little molds in them too.
The boys loved them as stackers and still don’t know that there is play dough inside.

Trevor is trying to arrange a trade to get his new horn back from Brendan. That was a Michaels score too. You should have seen the sheer delight on Trevor’s face when I squeaked it in the store!

Trevor also stopped to pick up some ice cream. He is having snickerdoodle cookie dough ice cream in a cone!

Brendan was not impressed

A little montage to finish tonight’s post. (Contains lots of horn squeaks, you have been warned)