Today was an assault on our senses, our emotions, and our self-confidence. The boys were in rare form today and could not be in the same room together without fighting and crying and hitting and throwing. They could not be in different rooms without screaming because they wanted what the other one had.
Bill had the day off of work for the holiday and did his best to give me some down time, but it was just that kind of crazy day.
I was about ready to have a meltdown from all the noise and misbehavior when I looked at the clock and realized that I was late for Brendan’s school meeting. I raced over there but was so mentally unprepared to deal with it all.
We always try to treat Brendan like the loveable boy that he is. We don’t see trachs and tubes and problems, we just see an amazing little guy. To do their job, the school does detailed evaluations and they quantify, qualify, label, and score all of Brendan’s deficiencies. He qualifies as between mild and moderate developmental delays in most areas like gross motor skills, social skills, and cognitive development. Obviously he has a severe delay in speech.
Even though he qualifies to attend their program, we have decided that it is too dangerous for him to start at school right as we enter the winter with cold/flu season.
He will be getting 1hr a week with a preschool teacher in home instead of 7hrs a week in the classroom, but we can continue to have OT/PT/Speech and feeding therapy services as well in home.
Come Spring, he can be re-evaluated and maybe have some classroom time.
I was just so depressed leaving the meeting, filling out a million forms, dealing with so many specialists. All of the scoring and tests and expectations we were going over and where he falls short just rubs a raw spot in my confidence. Trevor isn’t meeting many of the things they were talking about either. His refusing to potty train is frustrating too!
Pile on a heaping helping of wound up craziness. Here’s a free sample. Watch out for your volume.