Week 20 – Day 1

Bill and I carpooled to the hospital today, he dropped me off and went to the office. There was nothing too new on rounds for Brendan today, there will be a chest xray tomorrow to see how his lungs are doing. Getting blood last night definitely helped keep his sats up better today. Overall, Brendan seems to be in a better mood, with less pain than before. But his work of breathing has increased and his need for drugs has not gone down as much as I would have liked.

The nurses and I improvised a tummy time configuration that let him sleep a few hours in his favorite arm dangling position with his knees tucked under.

The physical therapists want to see Brendan have more arm and hand freedom so that he can work on his reaching/batting and getting to know his hands. I think Brendan is pretty happy with this. (the duck quack sound in the middle of the video is my dumb phone getting a text message) Of course that means more attention and supervision when he is in bed awake, and less getting anything done while I am at the hospital.

Trevor got to spend the entire day with Gramma, catching up on all they had missed.