Week 47 – Day 4

Friday night should be good, but we have another weekend with no night nurse so we are staying up two nights. On top of the week we just had, it is going to require a lot of caffeine. We did have a day nurse today so I got some things done that have been building up but there is never enough time. I didn’t get a nap in!
The boys have been excellent, and we are so thrilled that Brendan is doing so well. He sprinted for 5hrs today, 4hrs on his mist collar and 1 on his HME. We have resumed the drug weaning process, but we are taking things very slowly so hopefully we will not see such a struggle.

Fishing for cute babies, looks like we caught one!

There was lots of busy playtime today. The jungle is awesome.

Gramma was doing laps on the patio with a cranky Trevor today, and someone popped out of the house for a surprise!!

Brendan is outside!!! (and wearing a cute little hat)

His HME lets him be so much more mobile and I think he likes it! I know I do.

He knows he is cute in his hat and diaper combo

Tonight it was Trevor’s turn to play the baby typing game. He tries to bite the computer too much though.