Week 49 – Day 1

We are so pleased that today went MUCH better than the last couple of days. Brendan was taken down to radiology around 9:20am and the procedure took about an hour. Anesthesia went well and the new port insertion was successful. That means no nasal tube and no face tape! As soon as he was back to the room, they immediately started feeds. We had to stay for a few hours to make sure everything was working right and that he was peeing.

At 1:59PM, we walked out the door!

I am too tired to elaborate too much about the new tube but it is different. Brendan is sleepy but happy and doing very well tonight. He got an extra thorough scrub in the tub and a trach tube change and he is sound asleep. Trevor was such a good boy in the hospital, but again he was severely overstimulated and barely napped so he came home super crabby. He is extra clingy to me today too, I think the truck ride home alone in the backseat really rattled him. He went to bed early and I expect to hear from him early in the morning.

I just have some cell phone pictures/videos to share today.

This was last night, Brendan was trying to help Daddy open his bag of Fritos. Those darn bags can be tough!

This was also last night, I call it Trevor’s dramatic rant. Something about this video is hilarious to me, I have watched it several times! I can only imagine the list of things he was ranting about.

Trevor and I brought breakfast to Bill at the hospital this morning. Bill was awake a lot overnight taking good care of Brendan, it was mean of Trevor to steal his bacon.

He shook it for a while and wasn’t sure what to do with it. A few tastes later, he slobbered it up good and handed it back.

This is Brendan after his procedure. He was pretty relaxed!

You can see the new tube in this picture, I will take better shots of it tomorrow.

Every Tuesday in the ICU, there is a book cart that goes around and the kids can pick a donated book to keep. Trevor picked a book for Brendan.

He was reading to his brother

In the end, all of the events of this weekend seem to have put us in a better place, but time will tell. We hope this new tube configuration works out for him and that it doesn’t pull out easily.
For all of the people that asked me to kiss the boys for them, they both got tons of kisses on tape free cheeks!