Week 47 – Day 5

We are so excited that the weather is finally breaking! It was a nice cool morning for a change, so we were able to sit out on the front patio. Trevor used to have his breakfast bottle on the patio every morning but then it just got too hot. It is nice to get out of the living room where we spend the majority of our time now.

(I know, I am way beyond needing a haircut)

Just in time for better weather, the boys received a wonderful gift from their Grandpa Jack.

Some assembly was required, it is a good thing that Trevor was around to help!

Trevor tightens the wheel

They are ready to roll! We see lots of zoo trips with this in our future.

Because Brendan liked playing piano so much in the hospital, we had to get him a piano to play at home too

It makes him want to sing!

Trevor loves the buttons

Even pushing buttons with his toes is fun.

Tonight after Brendan’s bath, he was just looking too cute all wrapped in towels.

Week 47 – Day 4

Friday night should be good, but we have another weekend with no night nurse so we are staying up two nights. On top of the week we just had, it is going to require a lot of caffeine. We did have a day nurse today so I got some things done that have been building up but there is never enough time. I didn’t get a nap in!
The boys have been excellent, and we are so thrilled that Brendan is doing so well. He sprinted for 5hrs today, 4hrs on his mist collar and 1 on his HME. We have resumed the drug weaning process, but we are taking things very slowly so hopefully we will not see such a struggle.

Fishing for cute babies, looks like we caught one!

There was lots of busy playtime today. The jungle is awesome.

Gramma was doing laps on the patio with a cranky Trevor today, and someone popped out of the house for a surprise!!

Brendan is outside!!! (and wearing a cute little hat)

His HME lets him be so much more mobile and I think he likes it! I know I do.

He knows he is cute in his hat and diaper combo

Tonight it was Trevor’s turn to play the baby typing game. He tries to bite the computer too much though.

Week 47 – Day 3

Today Bill went to the office and Gramma and I played with the boys. It seemed to be a very long day! Both of them were very busy, constantly on the move.

They ate lunch together. Gramma even gave Brendan a few bites of Trevor’s sweet potatoes. He was resistant at first.

He did well though, he tasted and ate the tiny little bites!

Every bite Brendan gets is one less bite for Trevor

Besides having sweet potato chin, Brendan finally broke through those big top teeth!!!!! Once the skin broke, the teeth were almost totally uncovered. He was proud. That makes it 5 teeth for Brendan, 3 for Trevor!

Trevor thinks Gramma was paying too much attention to Brendan

He says “You can take pictures of my teeth! They are sharp!”

Growing in teeth is tough

Once she pays attention to Trevor, Brendan makes “pick me up” face

Brendan loves his little rocket dude

He must have had a silly infusion at the hospital, he has been so funny since he has been home. And he stays up real late too even after short naps today.

Trevor thought I needed a little extra flavor in my coffee today.

Even though the day consists of constantly chasing babies and it is very exhausting, we are all so thrilled to see them both doing so well.