Wrapping up this first week of the new year for the boys, all I can say is that I want a fresh start! It was a hard day. Brendan is still so-so, but not getting any worse. Trevor’s issues moved to the other end and liquid fire poop made his poor little butt red like a fire engine. He had to get multiple baths today to try to help him out. He was pretty miserable and it took two people to change his diaper and get him clean and smeared with diaper cream. He will love me years from now for sharing this info on the blog, of course. He hasn’t eaten anything new or unusual so I do not know what it the cause of this other than just being ill already.
I am feeling completely defeated and depleted. But just when you think that it can’t possibly get worse, it does. Our regular night nurse has an injured shoulder and can not work tonight. The nursing company found us a fill-in but she has never been here before so it will be interesting. Having any kind of help is better than trying to cover it ourselves.
Brendan does fine through the day if we stay on top of his breathing treatments. The nebulizer can connect straight in to his vent circuit so we can do them even when he is asleep and covered in sheet wrinkles.
He did sit up and play today, I think he is on the upswing from all of this. The Albuterol makes him a little silly too.
Even his crazy smile makes me feel better.
I didn’t take any pictures of Trevor today, so I grabbed a couple from his crib cam just now.
After dinner, he sat out on the porch with me and passed out some Halloween candy. There were not too many kids, but he really was mesmerized by kids in costumes. I think he really enjoyed it. We turned on the bubble machine that we got for portraits and the kids coming up to the house loved that. People were even taking pictures.
And now that they are both in bed and the day is done, I look back and realize that we can get through these days, we just do it. I mean, look how far we have come since last Halloween!
I had a Halloween picture in mind to take today, I will just have to do it tomorrow when everyone is feeling better!


