Bill and I traded places tonight because I couldn’t do one more night on the flytrap couch. It is strange to be home where it is so quiet. Brendan and all of his accessories come with a level of noise that we have just gotten used to.

Brendan made great progress today and had a full day of alert activity. He needed less suctioning, had almost no vomiting, and was able to wean his oxygen support down. It just wasn’t enough to come home today. He was on 5L when I left and he needs to be at 3 or 4. (If I never explained, 5L means 5 liters per minute of flow of O2 gas in to his ventilator or HME or PMV)

Brendan played and had fun all morning, and then hit his wall. I saw him getting tired so I did his sponge bath and trach tie change. He passed out in the middle.

Sponge baths are very messy and his sheets were dirty so I had to relocate Brendan so that I could make the bed. Since he was sleeping like a little rag doll, I put a pillow and blanket in the recliner and moved him to it.

When he woke up, he thought it was pretty cool that he was lounging in the recliner.

Both of his night nurses, Jennifer and MaryAlan came by again today and spent some time with Brendan. It is priceless to have even a small amount of time to run and get food, take a shower, or just sit and stare at a wall.

I was very glad for my evening with Trevor tonight and gave him lots of one on one time after dinner. He went outside and was fascinated with his 20ft long sundown shadow. He also likes finding birds.

I am sure there was more I wanted to say, but my eyes are closing on me whether I want them to or not.