I never know what I am going to find when I wake up in the morning. Brendan didn’t want to be put in bed last night, and I guess that trend continued through the night. He would wake up frequently and want to be picked up.

Bill finally put him on his little pillow on the floor. He slept much better being next to his dad! He better sleep well for me tonight!!

We did last minute laundry and shopping all day and got everything set for company. Brendan decided not to help, he was too busy at the workbench

We’ve been working on some goody bags and finally got them all put together.

Then Trevor and I went to the airport. We waited in the holding lot and watched planes landing. Trevor loved it!

He got a good close up of planes taxiing by on the ground and he watched the new sky trains going by. Planes on the ground and trains in the sky!

It was a lot of crazy getting everyone “introduced”, settled in and making dinner

Aunt Heather found Trevor’s tickle spots!

Full table!

Brendan won’t touch food, but he will help serve your dinner

Trevor was mixing green beans and ketchup in to his cup of milk and drinking it.

Trevor is maybe slightly wound up to have cousin company!

Kayla and Ashley helped give the boys their baths and then we got everyone ready for bed. I hope the beds in “Gramma’s House” are comfy and that everyone gets a good night of sleep. I am about to get the cot and go to bed myself!

Brendan did a great job at the doctor’s office today. He played “shake the oxygen tube” while we waited.

He got silly

His pulmonologist thought he looked great and is happy with his recovery. We have to keep working on Brendan now to wear his trach cap. He has to wear the cap all day long (12hrs) before he can have his next sleep study. Because of his illnesses, we are now looking at an earliest decannulation in the spring. We knew the original goal was very aggressive, but we were hopeful. The time will pass quickly.

When we got home, Trevor was pretty anxious. (He did have a busy morning staying home with Bill!) He absolutely hates to hear Brendan crying when he can actually make noise. (To be fair, it is a very loud harsh cry) If Brendan cries, Trevor runs, throws himself down, hits his head on things and cries.
I decided to take Trevor to lunch to help him get away while Brendan got used to wearing his PMV for the day.
We like this burger joint because it is loud and family friendly.

He says, “Where’s the food!?”

He pushed jelly packets around like a train while we waited. (This was his own doing, I didn’t show him!)

Tater tots, fries, chunks of mushroom-swiss burger. How can you go wrong?

For a little extra, you can upgrade the kids meal drink to a freshly made real milk shake. I got Trevor a strawberry one.

Guess what…he liked it!

I was very impressed with his behavior in the restaurant. He faced out a window that looked out onto a busy street so he pointed out big trucks going by. He loved people watching. He ate well, had his shake and stayed fairly clean too. It was nice to take him for a lunch.

Brendan went down for his nap just before noon and stood up in his crib 25 minutes later with a smile. So then at 5:30p, we were struggling to keep him awake. I got him through the tub and trach care and managed to keep him up until just after 7:00p. He is usually a 9:15p kind of baby. We will see what this means for the night, it is Bill’s cot night.

While I did Brendan’s stuff a little out of order, it meant Daddy had to finish bathing Trevor. Then he got to do the “wrap-a-Trevor-up-in-a-towel” game and cuddle for a while.

We’ve been getting the house ready for company but there is a lot to do tomorrow. I hope the boys grant us a good night of sleep!

It’s Bill’s birthday today and he got to sleep in until 7:30am. That’s like sleeping half the day away on his normal schedule!
After breakfast, Trevor got busy right away baking a nice fresh carrot cake.

He even did his own dishes when he was done baking!

All the talk of cake and batter and baking was too much, Brendan tried to make an escape

We talked him into coming back in to play with cars

Both boys begged and begged to go outside today. Trevor spent a good amount of time in “Gramma’s House” getting it ready for company. He sat out and waited and waited for the recycle truck and it just didn’t come. Tuesday morning it tried to do a sneak pick up and came by at 9:15a instead of its usual 11:45a. Today we waited until 12:30p and gave up and had to go in for naptime. It was kind enough to wait until 3:30p this afternoon so that Trevor was up and ready to see it go by!

Singing Happy Birthday, no candles

Trevor quite liked the cake he made

Brendan says, “Are you kidding me with this? Cake?”

We have tons of cake left, I wish we could cyber-send it to all our friends and family. Tomorrow, Brendan goes to see the pulmonologist for his routine visit plus follow up on his hospitalization. We turned him down to 2L of oxygen today, hopefully he can stay there and keep moving in the right direction. He still isn’t totally better from this illness. I am interested to hear what the doctor has to say.
Bill has the day off so he and Trevor can stay home and play!