I would say today was relatively unremarkable. We like those kinds of days.

Just routine vest therapy

Trevor “helped” put the ball pit away

More take apart cars

After work, Bill finished up a project he has been working on. Our trailer now has a beautiful wood rack for holding oxygen tanks for travel. I am going to paint or stain it and then it will be done.

All of the corners and edges are rounded and smooth.

I meant for this to be a tunnel for them to run under. They had other ideas.

The pictures are blurry because my good camera was out of reach and I had to use my phone

Trevor kept saying “My butt fell in”

We don’t have big plans this weekend. Hopefully it will be a chance to get more projects done.

Brendan had his cardiology appointment this morning. He took one of his Brendan Biscuits with him and it turned a few heads. He loves them.

He was a total stinker at his appointment. He fought every little thing. They could not get a valid blood pressure reading. There was no way they were getting the EKG. And they just wanted an echo enough to get a look at the important parts of his heart. Brendan’s nurse and I had to more or less lie on top of him and hold his arms and legs to let them get some images. The doctor liked what he could see though. He said everything still looks good, checkup again in four months.

Trevor had a good day. He stayed home with Bill this morning for the appointment. This evening got a little wild. No matter how many of any one thing that you have, they will want the same single item.

“Who, me?”

The funniest part of the whole day is that Brendan made his first poop on the big potty! I caught his “look” and ran him in. I think he was a bit confused at first. Trevor was mad, he didn’t want Brendan to have a turn, he suddenly said he had to go!
Crazy boys!

I am falling-over tired now. No night nurse tonight means I am going to set up on the couch and go to sleep right now!

Separately, I have sweet boys that play so nice! Trevor was up early today (6am!) and spent a good amount of time on his long time favorite take-apart cars.

He built Lego cars too

I had a meeting this morning with the local school district about Brendan’s preschool options. We have scheduled two evaluations, one for hearing and vision, and the other for PT/OT needs, and I had to fill out a ton of forms that allows the doctors to work with the schools to determine what course of action would be safe for Brendan. It may mean an at-home program for a while, or he might have a classroom to go to. He will be able to start as early as on his third birthday, or the first school day after. I can’t believe I was talking about school!!!

Brendan had a good day with his nurse. They went for a walk outside before it got insanely hot. They built a big geotrax layout and watched Frozen and Tangled. Trevor took a really long nap!!! I guess getting up early is the secret. I am not sure which I prefer. I think the early with the nap is my choice!

This evening we did some power cleaning.

The super crew

This is my first attempt at “Brendan Biscuits.” 😀 I brushed them with an egg wash and sprinkled coarse salt so that they would be a bit like his pretzels. These were made with beef broth and chicken bouillon granules. We will experiment with other flavors!

He loved them!! He even got mad when I threw a semi-burned one in the garbage and he got it back out.

This is what happens when both boys want to drive

Finally!! The new button arrived. Here is the new button on the left and the old button on the right. (Not really a fair size comparison because the new one is open and the old one is closed, but the new one is definitely more low profile on the outside. AND it glows in the dark!!)

These balloons are both filled with 6cc of water. You can see why the new one (left) will be more comfortable in his stomach.

Just another angle, new button on right.

The change-out went very smoothly although Brendan sure had plenty of crying to do. I was nervous!