Things are a little better today. Brendan still has the same symptoms. I got a decent night of sleep. I had to get Trevor around 1:30am and Bill got him at 4:00am. When Bill gets up for work just before 6:00am, Trevor now wakes up just in time to take Bill’s warm spot in our bed. Better that than getting him every 15 minutes, although it will be a tough habit to break. This morning he slept until almost 8:30am!

It was a busy day with OT at the same time as oxygen refills

Supply delivery

Garbage truck

We played barber tonight. All three boys got hair cuts. Bill got “the usual”.

Brendan just needed his duck wing taken off

I left Trevor’s longer, just cleaned up around the ears and neck

Bill can’t rock Brendan like he normally does so he has been reading to Trevor in his bed. Tonight they both accidentally fell asleep.

Brendan has been asleep three times, but each time I put him down, he wakes up and is very mad that I dare put him in bed. At 10:07pm as I type, he is still lying awake in bed and trying to make alarms beep by pulling apart his vent line or peeling off his pulse-ox probe. I know he is tired.