Medical Update

Not too many changes since last night, Brendan is doing fine on the Milrinone. He is looking a little more fluid balanced this morning, his skin isn’t as baggy and wrinkly but he doesn’t look puffy either. His doctor was pretty frustrated this morning, she was hoping to see his numbers improving more than they are. He had a little fever last night and although it went away quickly, they put him back on a round of antibiotics just to be sure to catch infection early if there is one. His PICC line has a clotted port, so they were going to put in a new one last night. Because of the fever, they waited and will probably be putting it in just after I left today. They did put a new arterial IV line in his leg to be able to have access for blood draws and pain meds because the one good port on his PICC is for the Milrinone right now.
He had another chest and abdomen xray this morning, when we go back later, we will hopefully get results of that.
He was very alert during rounds today. They did give him some Fentanyl earlier when he seemed a bit agitated. No news yet on the surgery, hopefully we will know today or tomorrow what his date is.

Trevor is doing great. He set a new record today and took 28cc of his milk from the bottle. He needed a few breaks to catch his breath and then he got too tired and fell asleep. They gave him his last 15cc through the tube. He is practicing and improving, that is all we can expect from him. The bursts of rapid breathing are getting fewer too. They are going to give him a few extra calories in his food by mixing a supplement in to his breast milk. That should start tonight and then maybe he will put on a little more weight.
He is making smelly diapers really well! His bilirubin levels are a little high, but they expect that he will take care of that himself soon. He will just look like a little pumpkin for a few more days. Nobody told him that Halloween was over!

Bill and I will be going back to see them again tonight, but we are not expecting many changes.

Pictures Update!

Tubes, wires and tape still, we can’t wait to see it all go.

Trevor doesn’t cry to much, mostly complains when he gets his diaper changed. He just finished eating and is wiped out.