So we thought last night when the nurse mentioned extubation for Brendan that it was a little bit shocking. We made it to the hospital in time to hear the doctors’ rounds today and they all agreed that while most children that go through the PA banding surgery can be extubated the next day, Brendan was a different case. He is on pretty high vent settings and they are going to go for a slow wean before they do anything drastic. Their first goal is to get him off of the blood pressure medications and get him through his antibiotic treatments. He is doing very well for a baby just having had his procedure and he is starting the recovery process.
His cardiologist gave him two big thumbs up today. The surgery nurses said that his gut incision is healing well. His ostomy is working.
He still has significant edema, especially in his head and face but it will continue to go down. This is normal too, it just will take time.

He was awake and alert again this morning and seems to be fairly comfortable. He only cries when they clean his chest tube or try to move him too much.

Trevor is doing very well at home. We are very lucky that he is such a good baby! We are also very lucky and grateful that Mom is here to take care of him while we make trips to the hospital. She is working hard to lighten the load for us and I even got a nice long nap in this evening.

We gave him his first bath at home tonight! There was no weird nurse singing in his ear and he still didn’t cry, he seemed to enjoy it.

He did try to eat lots of bubbles.

I bought this big fluffy bear almost 5 years ago in an after-Valentines-day clearance at the grocery store in a total impulse. My hope was that he would be my prop for taking photos with a baby to be able to see the baby’s growth over time in relation to the bear. The bear sat on a box in the corner of my room all this time getting covered in dust. No more neglect, he is ready to get to work! Bear & a baby photo #1! Hopefully there won’t be too many of these with just one baby in it.

The dogs are still trying to figure out just what is going on and why this pink squirmy thing is still here.