I am not even sure I can go over all of the information from the hospital today, it is all in a constant state of change. It is very likely that now they will decide to go ahead with the heart catheterization after all, we are waiting for them to put him back on the schedule. The different cardiologists don’t agree on the best course of action and doing the cath is the only way to get the real information needed to make the right decision. Right now, they can only speculate.
Medication changes seem to have totally backfired and they have sent poor Brendan seesawing from one extreme to another. They brought his heart rate and blood pressure down too low and now are having to administer dopamine and IV fluids to balance him back out. He hasn’t had a single wet diaper today despite increased Lasix so they’ve done another ultrasound and inserted a Foley catheter to get urine for some testing.
He is getting a new IV put in again and now they can’t give him anything for sedation so he is awake and upset.
Brendan has a long difficult night ahead of him, we only hope that tomorrow brings some answers.

This morning he was still riding the ativan waves and was sound asleep most of the time that I was there.

His bed was littered with empty sucrose bottles, he loves his sugar drops on his pacifier.

Trevor spent the day looking cute in his Valentine outfit.

He got a Valentine from Gramma

He was circled by monkeys

He thinks monkeys are silly

His hat is too big