It was Daddy’s day at the hospital today. He spent the whole day with Brendan and even held him for four straight hours to keep him happy. It is difficult now to get him in to a good position for holding, he has wires going to both sides of the bed that don’t give enough slack to take him out. It takes a lot of nurse effort to move him to the chair next to the bed. It will be even worse if he has to have to cpap machine again. He was working hard to breathe today, so we expect that it could be coming any time. He hates it, but if it is what he needs to keep that airway open, it is what they will do.
We are very close to having a decision on procedures. I can’t make up my mind which route I am hoping for, all of the choices have risk and lots of work ahead. I get more nervous as Monday approaches.
I’ll be spending most of tomorrow there with him and will cuddle him as much as possible.

Daddy and Brendan

He really likes to be upright, so they had him in a bouncy chair today

I had a Trevor day today. He is sleeping so well at night, so now he figures he doesn’t need to sleep during the day. He took a handful of 15 minute naps here and there and then finally one 2hr stretch in the afternoon. He is getting funnier every day, he thinks it is hilarious now to watch me eating, especially something crunchy. He was almost laughing at me.

Never a sad Trevor in the sink

Wake up baby!

He is admiring mirror baby

Space Captain Trevor asleep on the job