Week 26 – Day 3

Brendan’s fever was gone today and so far cultures have come back negative. He is staying on at least a three day course of antibiotics anyway for coverage until the rest of the cultures are done.
He was having a pretty good day today. He was smiling at times, quiet and seemed comfortable on the NAVA so he was just able to rest. The doctors will not be trying to push him to the home vent again this weekend. They are going to give him plenty of time to recover and rest before they test him again.

The physical therapist sat him up for play time and then he got snuggled in on his belly for a nap.

We are working on playing with different toys like bumpy rings. Brendan must be thinking about how he can use this ring to get a tube out.

He was good at throwing away the rings

Captain Calamari hangs from the vent arm

I did my first trach change today and it went very smoothly. Brendan handled it like a champion, he stayed nice and calm. I suppose all of the drugs have a lot to do with it, but he didn’t need any extra doses today at all.
While we were doing clean up, I changed out his whole ostomy base and cleaned him up. Then he got his mobile and had a nice long nap.

Bill and Gramma decided to reorganize the living room while I was at the hospital. We had been having a million discussions about how to most efficiently set up the room for when Brendan comes home. I think we have found a configuration that will work well and it was an awesome surprise to come home to all the furniture moved and the floors so clean! Trevor helped too. After all, he was wearing a 12mo size onesie today, he is BIG!

He likes the recliner in its new place!

He is just lounging on the couch with a fish.