May the 4th be with you, nerds.

Aunt Shannon got an extra full day of Crankopotamus Trevor while I spent the day with Brendan. Trevor’s teething is moving in to high gear now, although there is still no visual evidence of teeth.
He just wants to chew on his washcloth during his bath.

We put wet burp-rags in the freezer for him to chew on too.

Brendan had a day filled with ups and downs. He started off with morning crankiness but then got in to a better mood. See something different in this picture? He has only half of a tube mustache! (the NAVA probe is what is missing)

Brendan thought that his cheek felt so fresh and happy without tape on it that he would pull out his feeding tube too!! The nurse was putting him on the scale and was trying to be careful about pulling on his trach and managing his vent tubing. It was a perfect distraction for his little pinchy fingers to go straight to his nose.
We don’t ever get to see naked Brendan face so I had to take a picture. He got to have his bath and get his face all cleaned up before the tube got put back in and re-taped.

The replacing of the feeding tube pushed Brendan over the edge. The nurses had trouble getting in place and he just had an epic meltdown. He got some Ativan and lots of comforting and he finally settled down.

He was on the Trilogy ventilator for 24hrs, but all day long he was working pretty hard. His sats were excellent, his color was good, but he was having to breathe fast and his heart rate was elevated. He got switched back to the big hospital vent in automode to allow him to rest. Going to Trilogy straight out was pretty ambitious, so in the morning they may try to switch him back and let him get used to it again.
The technology is just not as gentle in the home vent, even with the same settings. It is like going 90 miles an hour in a new luxury sports car versus a 15yr old family sedan. They both get you to the same place in the same amount of time, one is just a lot more fun and comfortable!!

New tube in place, expensive vent reattached, and ready for a nice evening of rest: