The blog updates keep getting later, it means I am staying up too late! Then I am too tired and can’t even remember what happened this morning.

We started with a Trevor routine that included his solid foods and his bubble bath. I have replayed this video over and over because it cracks me up. Trevor cries when I even mention green beans, then he tries to act like he is sleeping when I try to offer more. (ok he really was falling asleep)

Trevor had some great tummy time today while he video chatted with Gramma. Then he spent the rest of the day alone with Aunt Shannon and Uncle Jon while Bill and I were busy.

Brendan had a really good day looking at his numbers, but in general he just wasn’t himself today. He was squirmy and agitated by something but I never could figure out what, but not mad enough to cry or even look upset. Just fidgety and doing his thing where he keeps turning his head back and forth. The doctor observed it for a while and tried a dose of Benadryl to see if it was itchiness from his trach ties.
His nurse and I did a tip to toe cleanup, baby lotion massage, fresh bag, fresh diaper, fresh trach ties, all new sheets, etc.
I held him for a few hours and he slept very comfortably (and he smelled very good!)

Once he was all settled in bed, he gave me about 20 minutes of “the real Brendan” with his adorable smiles and then just seemed a bit spaced out the rest of the day.

He did about an hour on the Trilogy ventilator, with a different kind of exhale valve to see if it would be more comfortable for him. He did really well on it but they didn’t want to push him with his current level of discomfort and the doctor wanted to be there to observe him when they do more.

The doctors have agreed that another bronchoscopy would be valuable to determine the real need for pressure support from a ventilator. That might happen this week before they go further with sprints and trials, I should know more tomorrow.

Brendan is going to get his 4-month immunizations now that he is far enough out from his surgery. They are waiting for a non-cranky day to get that done.

It was a long day, lots going on, but I can catch up more later, I am going to bed!!