I seem to start every post with something about it being a big day or a busy day .. I should just consider them normal now and make a big deal if it was slow!

Today was important, we got our shipment from Tatooine. These ARE the droids we were looking for!

What you are looking at is two 41L tanks of liquid oxygen (less than -300 degrees Fahrenheit inside!). Each one will hopefully last a whole week, and then the O2 guy will put us on a delivery schedule to refill them every other Thursday. We were so excited because the O2 concentrator machine was very loud and put off a ton of heat in to the room. It is hot enough outside already, our A/C unit is working hard. I think there is a 10 degree difference in my living room now. We are so so so glad!

Brendan is happy that his corner of the room won’t be so warm anymore

He is lounging in his cool crib. He might even get to wear a onesie soon!

His O2D2’s are settled happily in to the corner of the room. They are taller than the crib!

Brendan was still having some tough times today, but he had enough happy time to get on the floor with me and Trevor for 30 minutes and play.

Did Trevor just realize that he has to share my lap too?

Trevor was a cutie today, he had a better day with less screaming.

Brendan had a decent day. Coping with the weaning of drugs and the withdrawal effects is tough, so his moods go up and down. Poor Brendan has a long road of weaning ahead. It will be months and months of very gradual changes for him. He was not as smiley as usual today, but still enjoyed playing with Gramma. He sat in the bouncy chair for a long time watching everyone staying busy.

Trevor had another multiple personality day. He was either laughs or screams or sometimes both at once.
Never fails, he enjoys his bath.

Sometimes he really enjoys his bath!

Trevor got his new toy today. He is so active and crazy, he needed a place where he could kick to his hearts content.

He went looking to see if we got all the pieces.

All clear, such a helper!

He really loved the new jungle, he wanted to play with it all at once. He already had to be set on the tallest setting too.

Another day behind us, still moving in the right direction!

Today was a huge milestone! Brendan has been home one whole week, it sure has flown by. It is a big deal to us that he has been doing so well, we were told that 80% of kids that leave the cardiac ICU return in less than a week’s time. Most of them come back in the first 24 hours. Not Brendan!!

It was quite a long day. Brendan had some great happy time, but he is also battling withdrawal effects as we slowly wean off medication. Trevor had some happy time, but he is battling his teeth and he just yelled, screamed, and kicked the day away.

Brendan woke up hanging on to the monkey tail.

He had a ton of play time while Trevor had his morning routine

We got out the sling today and elevated him up in the middle of the room so he could get out of bed and be part of the action!

Trevor was able to join him too!

Brendan does need to work on his leg strength, so he needed something to kick

Brendan loves his brother!!

Tornado Trevor was such trouble today, we had to sit him in the corner!

He was hilarious in the corner

Trevor does this continuous yelling, unless you keep him highly entertained. He did not take kindly to being told his video would be published!

Even though we scrambled and worked hard all day, the boys are both doing very well. We are so grateful that Brendan has continued to improve. We couldn’t do it alone. Brendan has a great night nurse that allows us to get sleep. She takes good care of him. And Gramma keeps Trevor so well cared for, we don’t have to stress about him at all. He is putting her to the test lately!
I can’t wait until I can write about another week of progress sailing by!