We hope that everyone had a safe and relaxing 4th, Happy Birthday America!

We are lucky to have Gramma still here with us for this 4th of July. (It was Brendan this time that twisted her arm and convinced her to stay even longer). She fired up the charcoal Weber grill and made some seriously mouth watering BBQ ribs. We also had some super good homemade potato salad! So we didn’t miss having a 4th BBQ after all, even though we were stuck at home.

Brendan had a good night and a semi rough morning, but he has managed to keep his feeding tube in place all day long. That is a very good thing!

Brendan likes to see his dogs!

He likes to sleep on his side but has trouble staying that way. This tried and true blanket sling works wonders to keep air moving past his little body and trach tubes, but keep him supported on his side.

Brendan was in a good mood most of the afternoon, he just had a few spells of discomfort and lots of suctioning required.

He loves his Jacque the Peacock

Trevor got to try something new today! It is a noodle soup puree of carrots, peas, noodles and chicken. He has never had meat before! He was a little apprehensive.

But he was hungry enough to try it

Whoa, what is this taste?

Analyzing…

And he approves!

There is nothing yet that Trevor won’t eat, we hope that he stays that way. Brendan is going to give us enough eating trouble for the whole family!

Hopefully soon, we will hear back from the GI doctor’s office about surgery scheduling. I have so much anxiety about Brendan going back to the hospital, but I am so eager to get this huge milestone behind us!