We thought we were managing Brendan’s loose secretions with Benadryl but it only worked for a few days. He started a new drug this morning called glycopyrrolate aka Robinul. It should dry up the copious drooling and watery trach secretions and then cause less gagging and then hopefully a lot less vomiting. For the first part of the day, it seemed to be the miracle drug and Brendan had a great day. As the day went on, I think he ended up being a little overdry and a bit uncomfortable. Dialing in his dose will be the key. The danger is thickened mucous can cause a plug in his trach tube. We watch very carefully with his vent humidifier to balance it out and always have sterile saline drops on hand too.
I can handle that much better than projectile vomits.

Since he was in a great mood when he woke up from his morning nap, Brendan got another visit to the jungle

Trevor gets more entertaining by the minute. Is this not how you are supposed to sit in a bouncy seat?

No? Then how about this?

He constantly wants to explore new things, and likes to play.

Just don’t use the wrong tone of voice or say “Oh no!!!!” or he gets upset. He is very sensitive like that.

We are hoping with the right balance of dosing that Brendan can find a very comfortable level of dryness. He needs to get stronger, we found out that he will be having his ostomy reversal surgery and his G-button installation on September 4th. It is a little further out than we had hoped but it gives him more time to grow.

It was Southwest Airlines this time that twisted Gramma’s arm. If she extended her stay another week to the 23rd, she could get a large credit back on her ticket and use that towards coming back for surgery time. We are lucky to have her, she works hard to make things go smoothly day to day.