Year 2 – Week 28 – Day 5

Brendan showed improvement today. He was more interested in playing, he crawled all around the room. He laughed at his brother. His numbers are still bad, but this is kind of how it went last time too. A few more days and he should be better. We are already scheduled for the 18month checkup with the pediatrician on Wednesday, and he will be ordering a follow up chest xray to check out a suspicious spot and make sure everything is healing properly.
He still has lots of dripping and drainage and it makes him throw up, especially when he gets up from sleeping. I am not coping with the vomit well, Bill has been a hero helping in that aspect.
No matter what I try to do, he always seems to deliberately barf right down my shirt.

It was Sort and Sanitize day, our game of Inventory Undo with extra cleaning.

Brendan loves his “thumb trap” toy

What you are seeing on the floor is a puddle of stomach bile, formula, and mucus. Brendan managed to open the medicine port on his feeding tube and so the contents of his stomach slowly back up and leak out. He was more than happy to swish his feet and splash in it and spread it around. (hence the sort and sanitize day)

Brendan hides out in the toy box. He tried to climb in all by himself.

After work, Bill did some work outside and cleaned up all the tools and debris on the patio. The boys were highly interested.

They love the Daddy time they get in the evening. Trevor even runs to him and says “Daaa”.

Tomorrow is busy Tuesday with PT, OT and oxygen refill. I am sure they will go easy on Brendan.