Trevor continues to improve. He made it through the night without any serious episodes, but his breathing was fast and noisy. We borrowed this cute cool mist humidifier from Aunt Heather. Trevor loves it and I think it helped.

He was Gramma’s special assistant today and took all of Great-Grandma’s curlers out and put them away. He made sure to give her a good super-hold spray too.

While Great-Grandma was over, we video chatted with Bill and Brendan so she could see him. He was Mr. Super Precious for chatting.

Blowing kisses to say goodbye

Trevor had a tough evening, trying to decide who had the best ice cream cone.

He had a great bath. **applause**

He LOVES his little Gizmo buddy. I don’t know what he will do when we get home. He will have to settle for his own dogs!

The toughest part about the day was not being able to go out and take advantage of our extra time here. It snowed most of the day again and we could not go out and make a snowman. Keeping Trevor resting was all but impossible. I know he doesn’t look sick in this video. His meds make him weird. Ok, weirder than usual.

Brendan rocked his trach cap today, awesome numbers Li’l B!!

He loves Daddy’s xbox remote

It was Brendan’s turn to get a bike ride to Sonic. The rumor is that he licked some tater tots.

Something triggered the motion alert on Trevor’s spycam!

I was very happy to see such a healthy Brendan on chat today. I am also glad that Bill is sending me photos every night so Brendan can be a part of the blog.

For the second time, we didn’t get on our scheduled plane. Trevor got much worse as the evening went on last night and started the telltale barking cough of croup.
I put him to bed like normal and hoped that he would sleep well to help fight off the infection. But at 3am, he woke me up in a panic and he was struggling to breathe with a very loud raspy wheeze. Trying to be a calm mom, I tried everything I could to help him. We spent three long sessions in the bathroom steaming up the room until the hot water was all gone. We did several walks outside with Trevor bundled up like an ewok in my arms, but the cold air was too dry to help.
Just after 5am, I realized that none of my efforts were making any real improvements. I had to wake up Gramma and we took Trevor to the emergency room for a breathing treatment and some steroids to reduce the inflammation.
I never imagined that I would be sitting in a hospital room this trip, listening to alarms beeping and waiting an eternity for simple things.
The breathing treatment made an instant difference but didn’t last. The oral steroid did seem to help, but I am nervous about the night.
Trevor was a miserable, tired, crabby wreck all day with a hair trigger on his meltdowns. This evening, he is all wound up and wanting to go nuts, but the more active he is, the more he wheezes.

The ER doctor gave us documentation to help get our flight moved with no penalty or fare difference charges.
If a bug is bad enough to send Trevor to the ER, we have to keep it away from Brendan. We are quarantining ourselves at Gramma’s now until Thursday afternoon.
Bill and the nurses are doing great with Brendan and he is healthy. As much as I miss him and Bill, we have to try and hope that we can not put him at any more risk.

Poor Trevor just trying to relax. He was very agitated and afraid all day.

Better in the evening, he discovered the fun of the beauty shop

Both meds he got in the ER this morning were stimulants so he was something else and couldn’t be still or comfortable. We are trying to keep him calm now.

Brendan had a great day with Dad and a successful trach change. He got a lot of outside time and a long Christmas lights bike ride too!

I can’t wait to squeeze him again. Please please stay healthy, Brendan!!

Today was completely not what we would have expected. The snow came down heavily and steadily all day and made road travel treacherous. Even though my original flight took off just a few minutes late, there were big delays at the airport on most flights and I am glad we did not try to drive there today.
The biggest reason is that Trevor woke up this morning just cooking with a high fever. We made some phone calls and ended up taking him in to see Kayla and Ashley’s pediatrician. I was scared that if he had an ear infection, he would be in severe pain trying to fly home.
The doctor said his ears and throat looked perfect, no antibiotics needed. He probably has the same virus that I have been fighting all week. I am just nervous now because I don’t want Brendan to catch it, but there is no possible way to effectively quarantine Trevor, especially where we are short nurses.

After a miserable morning, Trevor took a nap and woke up in a much better mood. We are keeping up the ibuprofen and acetaminophen. Tonight he is still running a 101.5 temperature.

He was acting pretty “normal”, so we decided to attend Ashley’s piano recital so we would have a chance to say goodbye to everyone. Ashley looked beautiful and she did an excellent job! We were all very impressed!

Trevor did not want to sit and listen. He would say “I walk” and “Go go go”

He was jumping with Uncle Kevin

Family-sized tickle attack!

Last pictures with everyone since we leave tomorrow

Trevor and Mommy!

Trevor really liked playing piano! All this time, he did not even realize that Gramma had a piano.

Brendan and Daddy stayed busy today, they didn’t take too many pictures.

I am nervous about how Trevor will be feeling tomorrow and I hope we can go safely home. I hope the weather cooperates.