Year 3 – Week 26 – Day 7

Today was totally unexpected. Due to some scheduling issues, we didn’t have a nurse today. After Brendan had another really bad night with restlessness, crying, pain and vomiting, I was really worried about how I was going to make it through.
I started him on plain pedialyte and some prunes pushed in to his tube. (He hadn’t pooped since Monday morning!) Not only did he have two giant poops this morning (I know, too much information), but he had a perfect day without so much as a gag.
I really wish that he handled his formula as well as the pedialyte. Unfortunately, over 24hrs, he will get only 120 calories from his pedialyte instead of the 900 he should get from formula.

The boys were very good to me today, and I am so happy Brendan felt well. He took a great nap too.

I apologize, Future Trevor. It is like a mommy’s right to have this picture.
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“Can’t you see I am busy?”
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It cooled down today. Yesterday was 98 degrees!! Today the high was 88, so the mornings and the evenings were gorgeous. We were outside as much as possible.
Trevor is teaching Brendan how to shake hands and say “How do you do?”
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He is a tough teacher
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But kind and loving too
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Brendan is taking a break on the time out rock
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He must have naughty things planned, and was paying in advance
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Find a hat, put it on
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He wore his cap for hours today, no oxygen, doing great. Not a single gag, choke, or spew.
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We are weaning the formula back in again. Maybe with his gut all cleaned out, he will get back to normal. He has to be well for Kieran to visit! It is coming up so soon!

Year 3 – Week 26 – Day 6

I have nothing new for the blog tonight. It was a frustrating day for everyone, and I wasn’t in a picture-taking mood.

Like I said before though, I always can look back to help remind me why I should be happier today.

Brendan, April 2012
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Brendan, April 2013
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Trevor, April 2012
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Trevor, April 2013
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Year 3 – Week 26 – Day 5

I won’t lie, there are some days when I really don’t feel like doing this blog. The day was long, my mind is full. Brendan is throwing up again, so I am confused, not sure what to do next. Trevor was totally double-spazzed out tonight, and I don’t know why. I can’t even blame it on sugar or caffeine. (Although he did let himself out of the gate, got in to the chest freezer, fished around and helped himself to a bomb pop this afternoon. Good thing the freezer has a lock) Trevor didn’t nap. Brendan miraculously napped through oxygen refill.

Then there are moments in the day that insist that they be recorded in pictures. I am grateful for the history I have created here and the reference tool it has become. I am also happy to be able to easily reflect on our long journey. The happy moments are the fuel that keep us going.

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